What is DNA anyway? Should I consider genetic testing? Can my genes tell my future? All Access DNA answers the questions you have about genetics, healthcare, and popular issues in precision medicine as it relates to our daily lives. We may even veer into territory that is no longer science fiction but science reality. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic medicine and research. Join us as we empower everyone to know more about DNA in an entertaining format.
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What is DNA anyway? Should I consider genetic testing? Can my genes tell my future? All Access DNA answers the questions you have about genetics, healthcare, and popular issues in precision medicine as it relates to our daily lives. We may even veer into territory that is no longer science fiction but science reality. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic medicine and research. Join us as we empower everyone to know more about DNA in an entertaining format.
What does it really mean to grow up with Spina Bifida?
All Access DNA
32 minutes
1 month ago
What does it really mean to grow up with Spina Bifida?
Patient zero, memoir, understanding. In this conversation, Steven Crane shares his personal journey living with spina bifida, discussing the challenges he faced from birth through adulthood. He reflects on the support from his family, the medical treatments he underwent, and the impact of his condition on his life. Steven emphasizes the importance of advocacy, understanding, and resilience, and how he found purpose through writing about his experiences. He also addresses the complexities of navigating multiple health conditions and the role of healthcare providers in supporting patients.
Key Takeaways:
Spina bifida is a multifactorial condition with varying degrees of impact.
Advocacy for oneself is essential in navigating healthcare.
Writing can be a therapeutic outlet for personal experiences.
Being a patient zero can be both a burden and a responsibility.
Empathy and understanding from healthcare providers can significantly affect patient outcomes.
There are often hidden blessings in challenging circumstances.
Community and shared experiences can foster healing and connection.
Steven Crane is the author of the memoir "I Can Appreciate That", the novel "Staring at the Ceiling", numerous essays, and more than a million words of advertising copy. A graduate of the University of South Carolina, Steven lives in Marietta, GA, with his wife Carie. Their two sons are navigating college at University of GA and GA Southern. More at: www.brainsofsteel.com.
Facebook.com/ICATStory
Instagram: @icanappreciatethat
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Here are more resources related to today’s topic:
Steven’s website
Purchase “I Can Appreciate That”
Information on Spina Bifida from Mayo Clinic
Spina Bifida Association
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The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.
All Access DNA
What is DNA anyway? Should I consider genetic testing? Can my genes tell my future? All Access DNA answers the questions you have about genetics, healthcare, and popular issues in precision medicine as it relates to our daily lives. We may even veer into territory that is no longer science fiction but science reality. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic medicine and research. Join us as we empower everyone to know more about DNA in an entertaining format.