Send us a text Not everyone is wired to be outgoing and assertive. For them, finding their voice to advocate for themself may well be easy. But for others, finding their voice and confidence to communicate with their healthcare team may be extremely challenging. In this episode I’ll speak with Liz who will share her journey to find her voice, and how that has transformed her relationship with her medical team. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 ...
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Send us a text Not everyone is wired to be outgoing and assertive. For them, finding their voice to advocate for themself may well be easy. But for others, finding their voice and confidence to communicate with their healthcare team may be extremely challenging. In this episode I’ll speak with Liz who will share her journey to find her voice, and how that has transformed her relationship with her medical team. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 ...
Amyloidosis is No Longer a Death Sentence - There is HOPE
All Things Amyloid
23 minutes
6 months ago
Amyloidosis is No Longer a Death Sentence - There is HOPE
Send us a text For decades, AL amyloidosis was a disease for which there were no FDA-approved therapies, treatments we did have were often borrowed from multiple myeloma, and resulted in poor outcomes for patients. It is one of the 7,000 diseases classified as a “rare disease,” and over 95% of those have no FDA-approved drug. In 2018 that all changed and it created a cascade of drug approvals, accompanied by a flourishing pipeline of diverse clinical trials. This has launched a world of accel...
All Things Amyloid
Send us a text Not everyone is wired to be outgoing and assertive. For them, finding their voice to advocate for themself may well be easy. But for others, finding their voice and confidence to communicate with their healthcare team may be extremely challenging. In this episode I’ll speak with Liz who will share her journey to find her voice, and how that has transformed her relationship with her medical team. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 ...
