Amplify: A Podcast Powered by Patient Voice Partners
Ursula Mann, Brent Korte, Anne Marie Hayes, Christine Pisapia, Barry Liden
13 episodes
2 weeks ago
Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
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Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
Listening as a Leadership Superpower: A Conversation with Brigitte Nolet (Roche Canada)
Amplify: A Podcast Powered by Patient Voice Partners
39 minutes
2 months ago
Listening as a Leadership Superpower: A Conversation with Brigitte Nolet (Roche Canada)
How do you embed patient voices across a complex, research-driven organization—and across a country’s health system? Brigitte Nolet shares how her own journey with psoriatic arthritis shaped her leadership, why Roche Canada created a Chief Patient Experience Officer role held by someone with lived experience, and how collaboration across government, industry, and patient groups can accelerate access to innovative medicines in Canada. Why you should listen A leader’s lived experience guiding d...
Amplify: A Podcast Powered by Patient Voice Partners
Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
