Amplify: A Podcast Powered by Patient Voice Partners
Ursula Mann, Brent Korte, Anne Marie Hayes, Christine Pisapia, Barry Liden
13 episodes
2 weeks ago
Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
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Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
Making Data Meaningful: From Health Literacy to Real-World Evidence
Amplify: A Podcast Powered by Patient Voice Partners
31 minutes
2 months ago
Making Data Meaningful: From Health Literacy to Real-World Evidence
In this episode, Ursula and Christine are joined by Tara Cowling, Founder and President of Medlior Health Outcomes Research—a Canadian leader in real-world evidence (RWE), health technology assessment (HTA), and health outcomes research. Together, they explore how health data can be transformed into actionable insights that improve care, trust, and outcomes for patients. Tara shares her journey from her early work with NICE in the UK to leading an independent research consultancy in Can...
Amplify: A Podcast Powered by Patient Voice Partners
Episode Summary In this powerful episode of Amplify, hosts Ursula Mann and Christina Pisapia speak with Erin Paterson, a writer, caregiver, and advocate whose life was transformed by Huntington’s Disease (HD). Just as Erin and her husband were preparing to start a family, she learned a long-kept family secret: her grandmother may have died from Huntington’s. This revelation pushed Erin into rapid genetic testing, where she tested gene-positive. What followed was a decade-long stru...
