In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...
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In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...
Second Opinions and Shared Care: Navigating ITP with Confidence
Beyond the Count
25 minutes
1 month ago
Second Opinions and Shared Care: Navigating ITP with Confidence
When treatments stopped working, Danielle sought a second opinion. It gave her clarity, confidence, and a new way forward. Getting diagnosed during a pandemic wasn’t easy, but ITP Warrior @The.No.Spleen.Queen, Danielle Hodges, knew something didn’t feel right. In this episode, she walks us through why she decided to get a second opinion on her ITP diagnosis, what changed as a result, and why trusting your instincts as a patient matters. If you’ve ever felt unsure about your diagnosis ...
Beyond the Count
In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...
