Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
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Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
Boundless B Podcast
16 minutes 31 seconds
2 weeks ago
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
What if the strongest form of advocacy wasn’t a protest—but a shared story around a table? In this special Boundless B conversation, we explore how showing up, connecting, and supporting one another can be the most powerful act of all.Dr. Whitley Grant-Goodman, licensed clinical mental health counselor and addiction specialist, joins us to reflect on her recent session at the Coalition for Hemophilia B’s Meetings on the Road event in Charlotte, NC. Together with host Kai M Sorensen, they explore how the power of shared experience, caregiver validation, and accessible advocacy can create life-changing community moments. Whether you’ve been managing Hemophilia B for decades or are new to the journey, this episode reminds you: You are not alone—and the community is waiting with open arms.What You’ll Learn* Why community-building is essential for mental health and healing* How vulnerability and trust can grow quickly in shared spaces* The emotional power of in-person connection (and how to access it)* Why advocacy isn’t always loud—and how to practice it in everyday life* How caregivers can support their own mental and emotional health* What attendees walk away with from a Meetings on the Road event Episode Highlights[01:29] What it felt like to lead a Stronger Together session in person[03:09] Why in-person connection deepens emotional healing[04:15] The ripple effect of shared stories and vulnerability[06:34] Advocacy, support systems, and the power of laughter[08:33] Redefining advocacy—what it looks like in everyday life[10:45] How local advocacy and small actions can move change[11:40] Centering caregiver voices and the importance of self-advocacy[13:35] A final message for anyone who couldn’t attend in personMeet the GuestDr. Whitley Grant-Goodman is a licensed clinical mental health counselor and licensed clinical addiction specialist based in Durham, NC. With over a decade of experience supporting adults with anxiety, perfectionism, substance misuse, and boundary setting, she operates a fully virtual practice and leads trainings nationwide. Whitley is also a doctoral candidate researching the experiences of women of color and racial trauma.Tools, Frameworks, or Strategies Mentioned* Meetings on the Road by the Coalition for Hemophilia B* Self-advocacy through medical preparation and questioning* Peer-to-peer community building* Local advocacy through connection with elected officials* Caregiver support through story-sharing and validationClosing Insight & CTA“You don’t have to organize an event to build community. You can start with one honest conversation or one supportive meeting.” - Dr. Whitley Grant-GoodmanFind your people. Show up for yourself. And remember—hope and healing begin with connection.Resource & LinksCoalition for Hemophilia B – https://www.hemob.org/ (https://www.hemob.org/)Meetings on the Road Information – https://www.hemob.org/meetings-on-the-road (https://www.hemob.org/meetings-on-the-road)Balancing Life’s Issues – https://balancinglifesissues.com/podcast-bli/ (https://balancinglifesissues.com/podcast-bli/)Boundless B Podcast Page – www.hemob.org/podcastDr. Whitley Grant-Goodman: https://www.linkedin.com/in/whitleygrantgoodman/ (https://www.linkedin.com/in/whitleygrantgoodman/)
Boundless B Podcast
Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.