I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
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I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
Dan Boardman – Support Worker For A Ventilated Quadriplegic
Chats From A Chair
50 minutes
2 months ago
Dan Boardman – Support Worker For A Ventilated Quadriplegic
I chat with Dan Boardman, who has been a support worker for a ventilated quadriplegic since he was 21 years old. We chat about the rewards and challenges associated with working so closely with someone in their own home, some of the close calls they have had with the ventilator disconnecting, the emotional support they provide for each other and the importance of having interests outside of the workplace.
Chats From A Chair
I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
