I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
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I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
Kai and Brooke Colless - I Tried To Get Out Of Bed But I Was Paralysed
Chats From A Chair
44 minutes
12 months ago
Kai and Brooke Colless - I Tried To Get Out Of Bed But I Was Paralysed
In this episode I speak with Brooke Colless and her son Kai, who is a wheelchair user following a very rare spinal condition. We discuss the nomadic lifestyle the family were living, the concerning progression of Kai's condition, the day he tried to stand up and was paralysed, as well as the way that he is now dominating the adaptive surfing world.
Chats From A Chair
I speak with Sam Rose, as she opens up about her and her older sister both being diagnosed with a rare, inherited neurological disorder known as Friedreich's Ataxia. We discuss the events that led to the surprising diagnosis, how she feels watching her sister progressively get worse, the way that she expresses her sexuality online, her use of sex workers and how she makes the most of every day as she lives with "1 foot in the grave."
