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Down Syndrome: 21st Perspectives
Leigh Frillici, Anne Lewis, Monique Johnson
14 episodes
2 weeks ago
Welcome to Down Syndrome: 21st Perspectives. As mothers of children who have Down Syndrome, Anne and Monique were inspired to create a space to talk authentically about their experiences. Their friend, Leigh, joins them as a cohost and executive producer. The podcast name says it all: A perspective is “a particular way of thinking about or viewing something, influenced by one's experiences and beliefs”. It is our hope that our listeners will be inspired to share their experiences; engage in our community; raise awareness, and create connections and opportunities for advocacy. Join us!
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Parenting
Kids & Family
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All content for Down Syndrome: 21st Perspectives is the property of Leigh Frillici, Anne Lewis, Monique Johnson and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to Down Syndrome: 21st Perspectives. As mothers of children who have Down Syndrome, Anne and Monique were inspired to create a space to talk authentically about their experiences. Their friend, Leigh, joins them as a cohost and executive producer. The podcast name says it all: A perspective is “a particular way of thinking about or viewing something, influenced by one's experiences and beliefs”. It is our hope that our listeners will be inspired to share their experiences; engage in our community; raise awareness, and create connections and opportunities for advocacy. Join us!
Show more...
Parenting
Kids & Family
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Episode 5 - A New Extraordinary
Down Syndrome: 21st Perspectives
47 minutes 11 seconds
7 months ago
Episode 5 - A New Extraordinary

In this inspiring episode, Geralyn Spiesz, OT and founder of the Down Syndrome Action Plan, shares her journey from a Down syndrome diagnosis of her child in 2007 to becoming an advocate for brain-based, individualized support for children with Down syndrome. Drawing from her work as an occupational therapist and her personal experience as a mom, Geralyn breaks down the powerful, neurodevelopmental methods that helped her son—and many others—thrive.

Highlights include:

• (1:20) Why traditional therapies felt limiting—and what Geralyn did differently

• (9:40) How a simple log roll (13:17) and other movements can help reflexes and the brain’s incredible potential for growth

• (13:45) Why crawling and trunk rotation are musts for brain development

• (18:00) Stubborn vs. Independent - motivating and encouraging learning

• (22:53) Rethinking reading, testing, and school: challenges and strategies to tailor learning to your child

• (33:04) Geralyn talks about the successes and challenges for her high school son.

Plus, hear powerful stories about other parents who’ve challenged conventional thinking and seen their children flourish. The episode concludes with a powerful reminder: with love, creativity, and trust in the learning process, children with Down syndrome can achieve remarkable things.

Resources:

Geralyn's FB group - dsactionplan.com

Geralyn's book - Redefining the Reality of Down Syndrome: The Power of an Integrative Mindset

Down Syndrome: 21st Perspectives
Welcome to Down Syndrome: 21st Perspectives. As mothers of children who have Down Syndrome, Anne and Monique were inspired to create a space to talk authentically about their experiences. Their friend, Leigh, joins them as a cohost and executive producer. The podcast name says it all: A perspective is “a particular way of thinking about or viewing something, influenced by one's experiences and beliefs”. It is our hope that our listeners will be inspired to share their experiences; engage in our community; raise awareness, and create connections and opportunities for advocacy. Join us!