The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
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The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
EULAR PAED Podcast - "Understanding Rare Autoinflammatory Diseases From Recurrent Fever to Treatment Access"
EULAR PAED
40 minutes
8 months ago
EULAR PAED Podcast - "Understanding Rare Autoinflammatory Diseases From Recurrent Fever to Treatment Access"
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
EULAR PAED
The podcast "Understanding Rare Autoinflammatory Diseases: From Recurrent Fever to Treatment Access" explores rare autoinflammatory conditions, focusing on early symptoms, diagnostic challenges, genetic testing, treatment options, and barriers to accessing care. Experts and a patient share insights on conditions such as FMF, CAPS, HIDS, and systemic-onset JIA, emphasising the importance of advocacy, research advancements, and policy changes to improve patient outcomes.
