As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65.
For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone.
This isn’t meant to be a shiny podcast that gives you all the answers.
For a lot of us, the answers don’t exist - we’re just getting on the best we can.
Hosted on Acast. See acast.com/privacy for more information.
As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65.
For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone.
This isn’t meant to be a shiny podcast that gives you all the answers.
For a lot of us, the answers don’t exist - we’re just getting on the best we can.
Hosted on Acast. See acast.com/privacy for more information.
In this special bonus episode of FTD: Navigating the Crap, Beth is joined by Natalie Carter, host of the Dementia Dialogues podcast.
Earlier this year, Beth shared her own family’s experience of Frontotemporal Dementia on Natalie’s podcast, and now the roles are reversed as she joins Beth to share her story and reflect on what she’s learned through years of honest conversations with carers and families affected by dementia.
Together, they talk about the shock of diagnosis and the devastating lack of follow-up support so many families face, the emotional weight carried by carers who don’t always recognise themselves as carers and the guilt, burnout and isolation that come up again and again in these journeys.
They also discuss why forward planning, early conversations and peer support can make such a difference and why too many people still fall through the cracks, particularly older carers.
If you need advice or support, you can contact:
You can also listen to Natalie’s podcast Dementia Dialogues wherever you get your podcasts, where she continues these vital conversations with carers, professionals and people living with dementia.
Hosted on Acast. See acast.com/privacy for more information.