TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf
Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him.
Find Reuben and Sherri on LinkedIn: https://www.linkedin.com/in/flyduo/
Your support of the Immune Deficiency Foundation
helps ensure that people like Reuben get the education, advocacy, and support they
deserve. To learn more about our mission and to donate, visit primaryimmune.org/donate.
The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
All content for Immune Deficiency Foundation is the property of Immune Deficiency Foundation and is served directly from their servers
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TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf
Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him.
Find Reuben and Sherri on LinkedIn: https://www.linkedin.com/in/flyduo/
Your support of the Immune Deficiency Foundation
helps ensure that people like Reuben get the education, advocacy, and support they
deserve. To learn more about our mission and to donate, visit primaryimmune.org/donate.
The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
Bold Conversations: Misinformation with Dr. Cynthia Baur
Immune Deficiency Foundation
39 minutes 45 seconds
5 months ago
Bold Conversations: Misinformation with Dr. Cynthia Baur
Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Bold%20Conversations%20-%20Misinformation.pdf
Cynthia Baur, PhD, is a health literacy and health communication expert focused on improving health literacy at the individual, family, community and organizational levels. She directs the University of Maryland Horowitz Center for Health Literacy, the nation's first academic health literacy center, and is a professor in the Department of Behavioral and Community Health. She joins Dr. Nicole for a conversation about misinformation, disinformation, what we've learned about combatting them.
https://sph.umd.edu/research-impact/research-centers/horowitz-center-health-literacy
To donate, volunteer, or learn more about primary immunodeficiency, visit www.primaryimmune.org.
Immune Deficiency Foundation
TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf
Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him.
Find Reuben and Sherri on LinkedIn: https://www.linkedin.com/in/flyduo/
Your support of the Immune Deficiency Foundation
helps ensure that people like Reuben get the education, advocacy, and support they
deserve. To learn more about our mission and to donate, visit primaryimmune.org/donate.
The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
