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It Happened To Me: A Rare Disease and Medical Challenges Podcast
Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)
73 episodes
2 days ago
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#61 How Jack’s Basket Is Changing the Down Syndrome Diagnosis Story
It Happened To Me: A Rare Disease and Medical Challenges Podcast
43 minutes 19 seconds
5 months ago
#61 How Jack’s Basket Is Changing the Down Syndrome Diagnosis Story
In this heartfelt episode we welcome guest Carissa Carroll, M.Ed., Founder and Executive Director of Jack’s Basket, a nonprofit that has transformed the way families experience a Down syndrome diagnosis. A former educator with degrees from Bethel University and the University of Minnesota, Carissa taught at both the elementary and collegiate levels. But her life—and her mission—changed forever after the birth of her son Jack, and an abrupt, assumptive diagnosis experience. Determined to ensure future families would feel supported, celebrated, and connected, Carissa launched Jack’s Basket in Jack’s honor. Since then, over 11,000 families in 55 countries have received baskets filled with love, resources, and messages of hope. Carissa now leads her organization full-time and presents to healthcare professionals nationwide on how to deliver diagnoses without bias, while also engaging donors and volunteers who help carry out Jack’s Basket’s powerful mission. Topics Covered: What is Down syndrome and how it affects individuals and families Carissa’s personal story of receiving Jack’s diagnosis and the emotional impact The inspiration behind launching Jack’s Basket What’s inside a welcome basket and how it brings comfort to new families Carissa’s advocacy for bias-free diagnosis delivery in medical settings Common misconceptions about Down syndrome Why early connection and community support are crucial Memorable moments from Jack’s life and the families they’ve served Advice for new parents, healthcare providers, and loved ones welcoming a baby with Down syndrome Media highlights, including Carissa’s appearance on The Kelly Clarkson Show and DNA Today podcast (Episode #333) Jack’s Basket Resources: Jack’s Basket Website Request a Basket Genetic Counseling Webinar: "Communicating Unexpected News"   Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.
It Happened To Me: A Rare Disease and Medical Challenges Podcast