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It Happened To Me: A Rare Disease and Medical Challenges Podcast
Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)
73 episodes
3 days ago
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All content for It Happened To Me: A Rare Disease and Medical Challenges Podcast is the property of Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today) and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
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#62 Vision Through Music: Empowering Visually Impaired Kids with Adaptive Music Education
It Happened To Me: A Rare Disease and Medical Challenges Podcast
38 minutes 38 seconds
5 months ago
#62 Vision Through Music: Empowering Visually Impaired Kids with Adaptive Music Education
In this inspiring episode, we’re exploring the powerful intersection of music and accessibility with three incredible guests: Dr. Bradley Black, a world-renowned pediatric ophthalmologist and founder of the Vision Through Music program, Makayla, a passionate young musician and student in the program, and Maykaya’s mother Joann.  Dr. Bradley Black (he/him) practiced pediatric ophthalmology and strabismus in Baton Rouge, Louisiana. He is past president of the American Association for Pediatric Ophthalmology and Strabismus (AAPOS) and the Louisiana Academy of Eye Physicians and Surgeons (LAEPS). He has served on the boards of directors of AAPOS, the Children’s Eye Foundation, the Smith-Kettlewell Eye Research Institute, and LAEPS. He received the Honor Award, Senior Honor Award, and the Lifetime Achievement Award from AAPOS and the Achievement Award, Secretariat Award, and the Outstanding Advocate Award from the American Academy of Ophthalmology. He was elected to the American Ophthalmological Society. In 2024, he received the Parks Silver Medal, the highest honor awarded by AAPOS and CEF-AAPOS. Dr. Black is active in international ophthalmology. He served on the Orbis International Cybersight Medical Advisory Board and has performed and taught pediatric eye surgery in more than thirty countries.  One of his greatest professional achievements to date is founding the Vision Through Music program of the Children's Eye Foundation, which seeks to increase the number of music teachers who work with blind and partially sighted children nationwide. He and his wife, Cindy, have two children and two grandchildren. In his leisure time, you can often find Dr. Black sailing the Gulf of Mexico on his thirty-five-foot sloop.   Makayla Alger (she/her) is a passionate student of the Children’s Eye Foundation’s Vision Through Music Program (VTM). From an early age, she found joy in singing and playing on her sister’s keyboard. She is currently learning violin and will soon begin voice lessons through the VTM program. Makayla lives with a mutation to the TUBB4B gene, which has led to degenerative vision and bilateral sensorineural hearing loss. Over time, she has lost night vision, experienced a decrease in peripheral vision, and developed nystagmus. Her mother, Joann, vividly remembers taking Makayla to a pediatric ophthalmologist, who determined she would need glasses for life. Initially overwhelmed and unsure whether her young daughter would keep them on, Joann recalls when Makayla looked up at her parents and with a soft voice appreciatively said, “thank you.” From that moment, she never took her glasses off. Joann says the family has gotten creative to make things more accessible at home. Beyond her love of music, Makayla is also the author of “The Way I See It”, a story following Elena, a visually and hearing-impaired red fox who navigates Vermont’s scenic trails using her heightened senses. Along her journey, Elena meets many woodland creatures and teaches them important lessons about awareness, kindness, and understanding. Makayla and her mom Joann hope to raise awareness about TUBB4B genetic testing, as well as encourage more research into its progression and ultimately a cure. Whether you’re a parent, educator, healthcare provider, or music lover, this conversation will show you just how transformative inclusive programming can be. Mentioned in this episode: Vision Through Music program: VisionThroughMusic.org or email contact@visionthroughmusic.org Academy of Music for the Blind: ouramb.org Makayla’s book, The Way I See It available here on Amazon. Girl Scouts of America: GirlScouts.org  Summer Camp IN-SIGHT: in-sight.org/camp Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn
It Happened To Me: A Rare Disease and Medical Challenges Podcast