Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
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Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
In this special episode of Journeys through Pulmonary Fibrosis we a proud to collaborate with FESCA. Sue Farrington, President of the Federation of European Scleroderma Associations (FESCA) and Chief Executive of Scleroderma and Raynaud’s UK, speaks with Ilaria, who lives with Scleroderma and is Vice Chair of FESCA, and her husband Sergio. Ilaria was diagnosed with Scleroderma in 1996, and lung involvement in 1997, just three months after her relationship with Sergio began.
They discuss their experience of scleroderma with lung involvement, how it has affected their relationship, how it has affected them as individuals, and what advice they would give their younger selves.
Journeys through pulmonary fibrosis
Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
