Growing Up With ME/CFS

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Life in the Void

Whitney Dafoe

38 episodes

2 weeks ago

…every single researcher at Ron’s recent Working Group Meeting - every researcher there said they don’t care if they are the ones to discover the cure for ME/CFS, they just want a cure to be found to end our suffering. That is unheard of in scientific research or in any field of study - even in the arts…one thing to be grateful for today… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store

Alternative Health

Health & Fitness

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Alternative Health

Health & Fitness

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Growing Up With ME/CFS

Life in the Void

4 minutes

5 months ago

Growing Up With ME/CFS

I’ve done most of my "growing up" here in bed. And lately I’ve realized that "growing up" hasn’t been about figuring out the whole universe, but a process of acceptance - accepting that I don’t have it figured out and most importantly accepting myself and loving myself without "knowing it all"…And this is part of one of the saddest things about living with ME/CFS. Teaching us all so much about the essence of life and how to live it in a good way but then keeping us from putting those lessons ...