Send us a text If you’re a caregiver for someone with a rare disease, you are one of the unseen heroes of our community. Your strength, dedication, and love are the backbone of care, but we know this journey asks for everything you have, and then some. It’s easy to feel isolated, overwhelmed, and completely exhausted. It’s even easier to put your own needs last. But your well-being isn’t a luxury, it’s essential. ❤️ This episode is for you. We see you, we understand, and we want to walk with ...
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Send us a text If you’re a caregiver for someone with a rare disease, you are one of the unseen heroes of our community. Your strength, dedication, and love are the backbone of care, but we know this journey asks for everything you have, and then some. It’s easy to feel isolated, overwhelmed, and completely exhausted. It’s even easier to put your own needs last. But your well-being isn’t a luxury, it’s essential. ❤️ This episode is for you. We see you, we understand, and we want to walk with ...
Enzyme Replacement Therapy for Lysosomal Storage Diseases
March Forward
27 minutes
3 months ago
Enzyme Replacement Therapy for Lysosomal Storage Diseases
For families navigating Lysosomal Storage Diseases, the routine of Enzyme Replacement Therapy is a familiar path. But what if the future holds new and different options? In this episode of March Forward, we're exploring the cutting-edge science that could change how we treat these complex conditions. We're asking the big questions that many in our community think about: 🧠Can we get treatments safely past the blood-brain barrier? 🤔 How do you weigh a proven, lifelong therapy against a one-t...
March Forward
Send us a text If you’re a caregiver for someone with a rare disease, you are one of the unseen heroes of our community. Your strength, dedication, and love are the backbone of care, but we know this journey asks for everything you have, and then some. It’s easy to feel isolated, overwhelmed, and completely exhausted. It’s even easier to put your own needs last. But your well-being isn’t a luxury, it’s essential. ❤️ This episode is for you. We see you, we understand, and we want to walk with ...
