In this episode of the MEF2Cast, Blake Kelly shares her personal journey of raising her son Oscar, who has MCHS. She discusses the challenges of navigating healthcare in Amsterdam compared to the U.S., the emotional rollercoaster of receiving a diagnosis, and the importance of building a supportive community. Blake reflects on the various therapies and interventions they have tried, the balance of caregiving, and the unique personality and humor of her son. The conversation highlights the ongoing challenges of managing seizures and the innovative approaches that have made a difference in Oscar's life. In this conversation, Blake Kelly shares her experiences as a parent of a child with special needs, focusing on the challenges and triumphs of communication, education, and social interactions. She discusses the importance of advocacy, resource management, and the transition to adulthood for her son, Oscar. Throughout the dialogue, Blake reflects on her personal growth and the lessons learned from parenting, emphasizing the need for self-care and the significance of finding joy in everyday moments.

Subjects covered include:

• Communication with nonverbal individuals requires immense energy.
• Educational settings should be engaging to prevent boredom.
• Social interactions are crucial for personal development.
• Advocacy is essential for accessing resources and support.
• Transitioning to adulthood involves planning and preparation.
• Parenting a child with special needs brings both challenges and rewards.
• Self-care is vital for sustaining long-term caregiving.
• Guilt is a common feeling among parents of children with disabilities.
• Finding joy in small moments is important for well-being.
• Building a supportive community can ease the journey.

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