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MEF2Cast
MEF2Cast
37 episodes
3 days ago
Haley and Eli, parents of a child with MEF2C Haploinsufficiency Syndrome (MCHS), speak to both other parents and scientific experts to educate, support, and build community around MCHS
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Science
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Haley and Eli, parents of a child with MEF2C Haploinsufficiency Syndrome (MCHS), speak to both other parents and scientific experts to educate, support, and build community around MCHS
Show more...
Science
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Episode 32: Growing Up With Oscar
MEF2Cast
43 minutes 5 seconds
3 weeks ago
Episode 32: Growing Up With Oscar

In this episode, we sit down with siblings Maddie and Max Kelly as they reflect on what it was like growing up alongside their brother, Oscar, who has special needs. Through honest stories and heartfelt insight, they share early memories of welcoming Oscar into their family, the gradual realizations that his needs were different, and the ways those differences shaped their childhood.

The conversation explores the evolving journey of communication with Oscar, the deep love woven into their family dynamic, and how their parents worked tirelessly to create a childhood that felt full, balanced, and supported. Maddie and Max also speak to the crucial role of PCAs, the protective instincts that emerged over time, and the quiet challenges siblings often carry—even when resentment is rare.

They offer thoughtful guidance for families walking similar paths, emphasizing transparency, education, and the importance of caring for oneself while caring for others. Their perspective highlights not only the complexities of growing up with a disabled sibling, but also the joy, connection, and resilience that define their bond with Oscar.

Subjects covered include:

  • Early memories and first impressions of Oscar

  • Gradual realizations of developmental differences

  • How communication with Oscar has changed over time

  • Family dynamics and the influence of supportive parents

  • The essential role of PCAs in daily life

  • Navigating sibling emotions, confusion, and protectiveness

  • Advocating for disability awareness and understanding

  • Why self-care matters for parents and siblings alike

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📩 Questions, comments, or want to be a guest? Email us: mef2cast@gmail.com
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MEF2Cast
Haley and Eli, parents of a child with MEF2C Haploinsufficiency Syndrome (MCHS), speak to both other parents and scientific experts to educate, support, and build community around MCHS