I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
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I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
So many of us can relate to Marissa’s story, symptoms coming on suddenly, heart racing, rocking motion, feeling as if she was drugged, and many unusual symptoms she had never felt before. Over time she found her voice and learned the importance of self-advocacy. Today, she uses her voice and story to connect with other vestibular warriors on several different platforms.
In this episode, we touch on these and many more things:
~ mindset shift, symptom journaling, gratitude journaling, giving back
~ vestibular rehabilitation, behavioral vision doctor (Behavioral Optometrist), counselor/therapy
~ boundary setting, self-advocacy, support groups, family support
If you would like to reach out to Marissa please click on the links below:
YouTube
Instagram Living With Vestibular Migraine
Instagram Finding your joy on your vestibular journey
Facebook Vestibular Support Group: Meeting Every Thursday (see times below)
Facebook - Marissa's Page
Twitter
Spotify
Vestibular Voices
VeDA LBRC docuseries
You can reach out to me below or leave me a voice message at https://www.speakpipe.com/MenieresMuse
Instagram
YouTube Channel
Private FaceBook
Email: menieresmuse@gmail.com
Support Groups Online Support Groups: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa
The meeting ID and Pass Code are the same for all meetings.
Meeting Id: 841 905 3323
Pass Code: dizzy
Meniere's Support Group times:
Wednesday 10am CT / 9am ET
Wednesday 2pm CT / 1pm ET
Wednesday 5pm CT / 4pm ET
Wednesday 8:30pm CT / 7:30pm ET
Vestibular Zoom Support Group Meetings (for all vestibular disorders):
Thursdays at 8pm CT / 7pm ET
Thank you for listening!
Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible. See you next week warriors!
I’ll see you next week warriors.
Meniere's Muse
I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.
