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NDF Talks
Neuromuscular Disease Foundation
12 episodes
1 week ago
Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…” Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding
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Non-Profit
Business
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All content for NDF Talks is the property of Neuromuscular Disease Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…” Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding
Show more...
Non-Profit
Business
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NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose
NDF Talks
45 minutes 21 seconds
3 years ago
NDF Talks: "Getting To Know Your Genes" with genetic counselor Estie Rose

NDF Talks is happy to have Estie Rose educate us on the importance of pre-conception genetic screening and options available to help you have a child. 

Estie is a certified genetic counselor and outreach coordinator forJScreen, a national non-profit Jewish genetic disease screening program based out ofEmory University School of Medicine. Estie graduated from Yeshiva University’s SternCollege for Women and then went on to complete her Masters in Genetic Counselingfrom the Ichan School of Medicine at Mount Sinai. She has a special interest incommunity education and outreach, and is proud to be a resource for individuals of herown community who are facing genetic health issues.

NDF Talks
Welcome to the Neuromuscular Disease Foundation's podcast "NDF TALKS…” Each episode features a GNE Myopathy community member’s personal experience with GNE Myopathy. Participants will include patients, scientists, caregivers and family members, all sharing the triumphs and sometimes tribulations of life with this rare disease in order to provide potentially helpful and supportive information for anyone whose life is touched by GNE Myopathy. About NDF: Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding