In this episode of 'One Eye on the Horizon,' Tom shares his personal journey through a long battle with a corneal disease called keratoconus, corneal transplants, various complications along the way, and the ultimate loss of vision on in one of his eyes. We discuss the challenges and insights gained from his experiences.
He emphasises the importance of conducting personal research and advocating for yourself with doctors, while also highlighting the emotional and financial aspects of dealing with partial sight loss. And he tells us all about who Disco Pirate is and how he has helped with the healing journey.
I personally loved the way he had such a logical, scientific approach to explaining and understanding everything that he had going on. And I felt inspired by his positive outlook on accepting his new "norm"
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If you enjoyed this episode please follow along, or read more about the show here: https://www.charlieflounders.com/podcast-1eoth/
And lastly, your help in spreading the word would be hugely appreciated by me, and so very valuable to those newer to the journey of sight loss than us. If you know someone this story would help, please forward it to them. I would also like to see posters advertising the podcast in every eye unit in every hospital in the country. I have posters ready to go, if you can take one to your local unit and ask that they put it up, please let me know. I’d be happy to post one to you. Or perhaps you’re a healthcare professional working in hospitals and could introduce me to the right contacts to send them to? Collectively, I know we can make a huge difference, so please do get in touch if you have any ideas on how we can spread this message far and wide. Let’s sprinkle these stories around like fairy dust and hope that if enough dust falls, they will hit the ears of exactly the people that need to hear them!