Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting

https://is1-ssl.mzstatic.com/image/thumb/Podcasts113/v4/cf/e1/0e/cfe10e96-199e-6219-bb40-60bdfe3321cb/mza_542200431317661957.jpg/600x600bb.jpg

OPENPediatrics

500 episodes

1 month ago

In this Complex Care Journal Club podcast episode, Dr. Jody Lin discusses a qualitative study of shared decision-making for neuromuscular scoliosis surgery in children with medical complexity. She describes a broad range of family values and preferences that may guide decision-making, implications for clinical practice, and next steps from this work.‌ SPEAKER Jody Lin, MD, MS Pediatric Hospitalist Assistant Professor of Pediatrics Division of Inpatient Medicine University of Utah HOST Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: December 8, 2025. JOURNAL CLUB ARTICLE Lin JL, Devereaux T, Simon TD, Kaphingst KA, Zhu A, Narayanan U, Berry ABL, Eppich KG, Stoddard G, Smith JT, Andras L, Heflin J, Keenan HT, Asch SM, Fagerlin A. Caregiver Values and Preferences Related to Surgical Decision-Making for Children with Medical Complexity. J Pediatr. 2025 Jan;276:114366. doi: 10.1016/j.jpeds.2024.114366. Epub 2024 Oct 19. PMID: 39428089; PMCID: PMC11645212. OTHER ARTICLES REFERENCED Courageous Parents Network. Scoliosis and spine / spinal surgery: facts and decision-making. https://courageousparentsnetwork.org/guides/decision-making-around-spinal-fusion-surgery/. Accessed November 14, 2025. Lin JL, Clark CL, Halpern-Felsher B, Bennett PN, Assis-Hassid S, Amir O, Nunez YC, Cleary NM, Gehrmann S, Grosz BJ, Sanders LM. Parent Perspectives in Shared Decision-Making for Children With Medical Complexity. Acad Pediatr. 2020 Nov-Dec;20(8):1101-1108. doi: 10.1016/j.acap.2020.06.008. Epub 2020 Jun 12. PMID: 32540424; PMCID: PMC7655593. Lin JL, Cohen E, Sanders LM. Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey. J Pediatr. 2018 Jan;192:216-222. doi: 10.1016/j.jpeds.2017.09.001. Epub 2017 Nov 6. PMID: 29102046; PMCID: PMC5732902. Lin JL, Tawfik DS, Gupta R, Imrie M, Bendavid E, Owens DK. Health and Economic Outcomes of Posterior Spinal Fusion for Children With Neuromuscular Scoliosis. Hosp Pediatr. 2020 Mar;10(3):257-265. doi: 10.1542/hpeds.2019-0153. PMID: 32079619; PMCID: PMC7041549.‌ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/xcz7qm4n2b9rn636rrnq/Jody_Lin_Final_transcript_12-4-25.pdf. Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Lin JL, Huth K. Exploring What Matters: What Families Value in Complex Surgical Decision-Making. 12/2025. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/exploring-what-matters-what-families-value-in-complex-surgical-decision-making.

Health & Fitness

RSS

All content for OPENPediatrics is the property of OPENPediatrics and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

https://i1.sndcdn.com/avatars-WUyMJW0zOJENeDDP-RzVYUA-original.jpg

Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting

OPENPediatrics

37 minutes 3 seconds

8 months ago

Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting

In this special Complex Care Journal Club podcast episode, co-hosts Emily Goodwin, Kristie Malik, and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2025 annual meeting. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years. SPEAKERS Lucas Bruton, MD, MEd Instructor of Pediatrics Northwestern University Hannah Lane, PhD, MPH Assistant Professor Duke School of Medicine Jennifer B. Peralta, MD, MSHPM, MS Health Sciences Clinical Instructor UCLA Department of Pediatrics David Geffen School of Medicine Amy Porter, MD, PhD Physician-Investigator, Instructor Mass General for Children Massachusetts General Hospital Harvard Medical School Elaina Schueler, BA Clinical Research Coordinator Medical College of Wisconsin Rebecca Steuart, MD, MS Assistant Professor of Pediatrics Medical College of Wisconsin Aditi Vasan, MD, MSHP Assistant Professor of Pediatrics University of Pennsylvania and Children's Hospital of Philadelphia Peter Walsh, BA Behavioral Research Coordinator Ann and Robert H. Lurie Children's Hospital of Chicago HOSTS Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado Emily J Goodwin, MD Clinical Associate Professor of Pediatrics, University of Missouri-Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy Kansas City Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: May 12, 2025. REFERENCE Pediatric Academic Societies. Who we are. Accessed April 29, 2025. https://www.pas-meeting.org/about/ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/ng43ccschnbg2vfnp9wq7v5h/CCJCP_May_Conference_5-9-25.pdf Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6n using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Goodwin EJ, Malik K, Bruton L, Lane H, Peralta JB, Porter AS, Schueler E, Steuart R, Vasan A, Walsh P, Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting. 5/2025. OPENPediatrics. Online Podcast.

OPENPediatrics