Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
All content for PWS United is the property of PWSA | USA and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Scoliosis Awareness - Prader-Willi Syndrome Association | USA
United in Hope Conference
Home - 2025 United in Hope PWS Conference
How-to-Download-the-2025-United-in-Hope-PWS-Conference-Mobile-App.pdf
2025 United in Hope Welcome Packet
2025Family-Agenda-2.pdf
2025ClinicalScientific-Agenda.pdf
2025ProfessionalProviders-Agenda.pdf
2025Adults-with-PWS-Agenda.pdf
50th Anniversary
PWSA Memory: 1990_Vol-XVI-N1-Jan-Feb-1990.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
Prader Silly: A Night of Rare Laughs - Campaign
Fundraisers
Hunter Lens Golf Tournament - Campaign
Hummus, Tahini, and PWS Awareness - Prader-Willi Syndrome Association | USA
United We Brunch - Campaign
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Spotlight on Hope: Ada Thrives and Shines - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA
Family Support
Adults with PWS Advisory Board Spotlight: Abbott Philson - Prader-Willi Syndrome Association | USA
Family Resource Program - Parents/Caregiver Focus Groups
Family Resource Program - Sibling Focus Groups
Recruitment – SibTime II -English - Influents Innovations
Ask Nurse Lynn: Osteoporosis, Calcium, Vitamin D - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Get to Know Aardvark Therapeutics Phase 3 HERO PWS Study
Home | Hero Trial
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
Voice of the Patient Report: VOP-Report-4.30_.pdf
PWS Externally-Led Patient-Focused Drug Development Meeting
PWS United
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
