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PWS United
PWSA | USA
56 episodes
1 week ago
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
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Non-Profit
Education,
Business
RSS
All content for PWS United is the property of PWSA | USA and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
Show more...
Non-Profit
Education,
Business
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Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar
PWS United
36 minutes 13 seconds
3 weeks ago
Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.   24 Hour Crisis Line: 941-312-0400  Make-A-Will Month  Your PWS Story Matters—And the Legacy You Leave Can Echo Far into the Future - Prader-Willi Syndrome Association | USA  Planned Giving | PWSA USA  PWSA Memory  PWSA Memory: PWSA Conference Held with Prader-Willi California Foundation in 1999 - Prader-Willi Syndrome Association | USA  Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA  Events   PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign  Fundraisers  2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA  Contact email: mhampton0933@gmail.com 16th Annual Hunter Lens Golf Tournament - Prader-Willi Syndrome Association | USA PWSA Fundraising Pages - Campaign  Spotlight on Hope  Volunteer Spotlight: Melissa Rivas - Spreading Joy, Creativity, and Hope - Prader-Willi Syndrome Association | USA  Share Your Story - Prader-Willi Syndrome Association | USA  Advocacy  Exciting News! PWS Included in FY26 Department of Defense Appropriations Bill for Medical Research Medicaid-Fact-Sheet-1.pdf  Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA  Family Support  Understanding Gastric Motility and Gastroparesis in PWS - Prader-Willi Syndrome Association | USA  Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA   Ask Nurse Lynn: Leptin and Hyperphagia Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA   Research  Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom  Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA  www.heroforpws.com  Announcements/Resource Spotlight  Qualifying for Social Security Disability with PWS 
PWS United
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.