Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
All content for PWS United is the property of PWSA | USA and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
PWS United
1 hour
2 days ago
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
The latest in PWSA | USA events and PWS news in advocacy, family support, and research.
24-Hour Crisis Line: (941) 312-0400 - Available 24/7, including Holidays.
Preparing for the Holidays Blogs/Resources:
Celebrate Thanksgiving Safely
Tips and Techniques for a Safe Holiday Season
Cousins at Christmas: Opening the Conversation of Your Child’s Special Needs
A Letter to Friends and Family
PWSA Memory:
September 1997 edition of The Gathered View
Spotlight on Hope:
Share your submission!
2025 Angel Drive Campaign:
Click Here to Make an Impact
Hope in Action Video - Shaping the Future of PWS
Save the Date: Giving Tuesday is Tuesday, December 2, 2025 - DOUBLE your impact when you give to the Angel Drive on that date!
PWS Christmas Experience near PDX:Email pwsaorwa@gmail.com by December 3, 2025 to RSVP.
Prader Silly:
Event Photo Gallery (Photo credit: Taylor Brown | @word.doc_brown)
Claus for a Cause:
Register for Claus for a Cause
Bid on Claus for a Cause Silent Auction Items
Donate to Claus for a Cause
D.C. Fly-In - Applications for the 2026 D.C. Fly-In will open soon!For questions, email advocacy@pwsausa.org.To sponsor this event, email development@pwsausa.org.
Operation Holiday Cheer
Click Here to Submit an ApplicationDeadline to submit an application is Monday, December 1, 2025. Email info@pwsausa.org with any questions.
Prader-Willi Syndrome and Diabetes
Click Here to Read the Blog Article
¡Anuncio! Nuevo Grupo de Apoyo en Español
Únete Aquí
Ask Nurse Lynn
PWS and Aging Response Article
Submit Your Own Non-Emergency Question about PWS
TREND Community and PWS Connect on Discord
Click Here to Learn More
Join the conversation today! Interested? Email interested@trend.community and we’ll send you a private link to join PWS Connect on Discord!
Research Spotlight
Harmony Biosciences TEMPO PWS Clinical Trial
PWSA | USA Resource Spotlight
Central Adrenal Insufficiency Screening with Morning Plasma Cortisol and ACTH Levels in Prader-Willi syndrome
Intro Music: https://www.bensound.com/ License certificate #2242442
PWS United
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.