Between Hope and Fear

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Rare Care Chronicles

TANGO2 Research Foundation

9 episodes

2 weeks ago

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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Between Hope and Fear

Rare Care Chronicles

27 minutes 53 seconds

1 year ago

Between Hope and Fear

Between Hope and Fear: Facing a Potential Diagnosis with a New Pregnancy

Meet Jake's parents and Erling's dad. Both Jake and Erling live with TANGO2 deficiency disorder (TDD). In anticipating another pregnancy, how did they cope with the fear of a possible TDD diagnosis with their 3rd child? Take a moment and listen to their story and their journeys of hope and fear.

About the TANGO2 Research Foundation: Our mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

To learn more, visit ⁠⁠⁠⁠www.tango2research.org⁠⁠⁠⁠. Find us on Facebook: ⁠ / tango2research ⁠ Find us on X: ⁠ / tango2research ⁠ Find us on Instagram: ⁠ / tango2researchfoundation ⁠ Find us on LinkedIn: ⁠ / tango2-research-foundation