Veronica and Tyson's Story

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Rare Care Chronicles

TANGO2 Research Foundation

9 episodes

2 weeks ago

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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All content for Rare Care Chronicles is the property of TANGO2 Research Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Rare Care Chronicles is a podcast series by the TANGO2 Research Foundation covering many topics including rare disease care, research, and experiences.

Non-Profit

Business

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Veronica and Tyson's Story

Rare Care Chronicles

28 minutes 51 seconds

7 months ago

Veronica and Tyson's Story

Isabella Riezler, Science Communications Manager at the Chan Zuckerberg Initiative (CZI), volunteered her time and talents to support the TANGO2 Research Foundation by capturing the story of this year's Ambassador Family: the Swetek-Jones family.In this heartfelt video, Veronica and Tyson share their journey to find a diagnosis for their daughter, Thea, and how that path led them to create the TANGO2 Family Facebook group—a vital space offering connection, information, and support for families impacted by TANGO2 Deficiency Disorder (TDD) around the world.
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