Welcome to Episode 4 of Rare Together. In this episode, we have the honour of bringing Dawn and David's story to you. Dawn, who is from Alberta, Canada, talks to us about her rare diseases - Hypogammaglobulinemia, Hemiplegic Migraines, and Pituitary Adenoma, which has resulted in secondary adrenal insufficiency. Joining her is David from Los Angeles, USA, who shares his experiences with Acromegaly, Diabetes Insipidus, adrenal insufficiency, and the stroke he suffered as a result of a surgery he underwent.
Join us for another insightful conversation as we delve into how their rare conditions have affected their daily life. We discuss the adjustments they’ve had to make due to their conditions, the complexities associated with adrenal insufficiency, and the ripple effect their diagnosis has had on loved ones, among many other related topics.
Andrew Grant returns as host and facilitates this incredible conversation; Andrew is a highly experienced medical research consultant with LDA Research, an international medical market research organisation working in the pharmaceutical industry and medical device sectors.
We’ve also created a growing and supportive community of people from across the globe affected by rare diseases. If you or someone you care for is affected by a rare disease diagnosis, you can join the conversation online by joining our private Facebook group, the Rare Disease Network (https://www.facebook.com/groups/rarediseasenetwork).