Episode 6: Understanding how patient organizations can support families

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Rarely Heard: Hunter Syndrome

Takeda Pharmaceuticals

10 episodes

2 months ago

Rarely Heard is about Hunter syndrome, a rare and life-changing genetic condition and is intended for families, patients, and anyone interested in learning about the disease.This podcast is initiated and funded by Takeda Pharmaceuticals and is intended for an international audience outside the USA and UK. The information shared is for educational purposes and does not constitute clinical recommendations for diagnosing or managing disease. The speakers received honoraria from Takeda for their participation. The views expressed reflect the experience and opinion of the speaker. VV-MEDMAT-45197

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All content for Rarely Heard: Hunter Syndrome is the property of Takeda Pharmaceuticals and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Hosted on Acast. See acast.com/privacy for more information.

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Episode 6: Understanding how patient organizations can support families

Rarely Heard: Hunter Syndrome

35 minutes 58 seconds

4 years ago

Episode 6: Understanding how patient organizations can support families

Living with Hunter syndrome is overwhelming, but there are many sources of support available. This episode features Bob Stevens (UK MPS Society) and Terri Klein (US National MPS Society), who are very familiar with the challenges that families face. They explain the importance of patient organizations and share practical advice from their many years of experience. For more information on these organizations, please visit www.mpssociety.org.uk and www.mpssociety.org. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda.

Date of recording: September 2021

VV-MEDMAT-54315

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