Episode 7: A parent’s perspective: Living with Hunter syndrome

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Rarely Heard: Hunter Syndrome

Takeda Pharmaceuticals

10 episodes

3 months ago

Rarely Heard is about Hunter syndrome, a rare and life-changing genetic condition and is intended for families, patients, and anyone interested in learning about the disease.This podcast is initiated and funded by Takeda Pharmaceuticals and is intended for an international audience outside the USA and UK. The information shared is for educational purposes and does not constitute clinical recommendations for diagnosing or managing disease. The speakers received honoraria from Takeda for their participation. The views expressed reflect the experience and opinion of the speaker. VV-MEDMAT-45197

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All content for Rarely Heard: Hunter Syndrome is the property of Takeda Pharmaceuticals and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Hosted on Acast. See acast.com/privacy for more information.

Medicine

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Episode 7: A parent’s perspective: Living with Hunter syndrome

Rarely Heard: Hunter Syndrome

32 minutes 24 seconds

4 years ago

Episode 7: A parent’s perspective: Living with Hunter syndrome

The diagnosis of Hunter syndrome compels families to re-evaluate their priorities and rethink their future plans. Bob Stevens joins us again, but this time from a parent’s perspective, to share his family’s journey as his two adult sons navigate life with the attenuated form of Hunter syndrome. This information is available to the general public for informational purposes only; it should not be used for diagnosing or treating a health condition or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further advice. This information of disease could have age restrictions in some countries. Please follow these restrictions. The information, views and opinions of the presenter do not necessarily reflect the views and opinions of Takeda.

Date of recording: September 2021

VV-MEDMAT-52004

Hosted on Acast. See acast.com/privacy for more information.