South Central PA Sickle Cell Council, Dwayne Golden
19 episodes
3 months ago
"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
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"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
On this Episode Dwayne talks with Lewis Hsu, M.D., Ph.D. Co-author of "Hope & Destiny,": The Patient and Parent's Guide to Sickle Cell Disease and Sickle Cell Trait along with Allan F. Platt Jr. P.A.-C. M.M.Sc., James Eckman M.D.
Dr. Lewis Hsu discusses the revised edition of "Hope & Destiny," a book series that aims to provide comprehensive education about sickle cell disease and accurate information on treatment. The authors wanted to use plain language and voice the stories of individuals with sickle cell disease. The revised edition provides updated information on COVID-19's impact, pain management guidance, and new resources. The book series is trusted worldwide and has sold over 75,000 copies. The authors are also working on other literature about sickle cell trait and awareness, as progress in the field of sickle cell disease continues.
SCD Stories
"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities.
Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities.
Through these stories, we aim to shed light on the often-overlooked experiences of those living with Sickle Cell Disease and other health disparities, while also exploring strategies for resilience, self-advocacy, and community building.
Join us on this journey as we seek to inspire hope, promote awareness, and cultivate empathy for those living with chronic illnesses and health disparities.
