In episode 154, host Kevin Schaefer talks with Coach Damon Vincent from Lafayette, Louisiana. Damon is an adaptive fitness specialist who works with clients with various rare diseases and disabilities, including SMA. He talks about his journey as a personal trainer, living with his own rare disease, and building a community with others in his field.
Damon’s website: https://fitnessforspecialneeds.com/
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In episode 154, host Kevin Schaefer talks with Coach Damon Vincent from Lafayette, Louisiana. Damon is an adaptive fitness specialist who works with clients with various rare diseases and disabilities, including SMA. He talks about his journey as a personal trainer, living with his own rare disease, and building a community with others in his field.
Damon’s website: https://fitnessforspecialneeds.com/
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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums
#147: Brandi Lewis, rare disease advocate and speaker
SMA News & Perspectives
37 minutes 2 seconds
9 months ago
#147: Brandi Lewis, rare disease advocate and speaker
In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and nonprofit founder, Brandi is passionate about helping others diagnosed with chronic illnesses. She herself has been diagnosed with aplastic anemia and PNH, the symptoms of which began in 2009. Her nonprofit, Brandi’s Blessings, was created to spread awareness and support blood disorder patients. She notes that her greatest accomplishment is having saved three lives by encouraging people to register to become bone marrow donors. Brandi is a dog lover of a labradoodle, Milo, and thinks laughter is the best medicine.
Follow Brandi on Instagram at @_brandilewis_!
Brandi’s website: www.brandilewis.com
Brandi’s column: https://pnhnews.com/category/columns/from-fear-to-fighter-a-column-by-brandi-lewis/
================================
To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.
SMA News & Perspectives
In episode 154, host Kevin Schaefer talks with Coach Damon Vincent from Lafayette, Louisiana. Damon is an adaptive fitness specialist who works with clients with various rare diseases and disabilities, including SMA. He talks about his journey as a personal trainer, living with his own rare disease, and building a community with others in his field.
Damon’s website: https://fitnessforspecialneeds.com/
================================
To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums
