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Sharing our stories with vascular and aortic connective tissue conditions
Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome
Staying Connected
1 hour 6 minutes 33 seconds
1 year ago
Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome
Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a few years before he died, but was told there was no need for a genetic test. … Read More Read More
Staying Connected
Sharing our stories with vascular and aortic connective tissue conditions
