In this heartfelt and inspiring episode, we welcome special guest Hannah, whose daughter, Ella, was diagnosed with the rare neurological disorder Aicardi Syndrome. Hannah shares Ella’s journey—from the early signs and emotional diagnosis to the daily triumphs and challenges their family faces.

We talk about the power of strong support systems, the community that has rallied behind Ella, and the ways Hannah and her family are finding joy in every milestone. This conversation is both uplifting and deeply moving, shining a light on resilience, love, and the importance of awareness for rare conditions.

Plus, Hannah shares details about an upcoming fundraiser celebrating Ella’s first birthday—a chance for listeners to get involved and support a cause close to our hearts.

If you’re looking for a story of hope, courage, and connection, this is one you won’t want to miss.

Important Links:

Registration Link for Ella's Fundraiser:

https://docs.google.com/forms/d/11lOBNNYdmPePSlMqvYfY50vmnq9omi4u-zLEfmOiSJI/edit

Aicardi Syndrome Foundation:

https://aicardisyndromefoundation.org/