Timothy Syndrome Alliance (TSA)

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Talking Charities

Jo Edwards, Brad Ainsworth and Emma Shepherd

15 episodes

2 weeks ago

People who make a positive difference! In this series, we shine a spotlight on some of the incredible work being done by charities in our community and the amazing individuals who drive these efforts forward. Their dedication and passion inspire us all, and we are proud to share their stories and celebrate their impact. The charities represented in this Podcast are supported by the St. James's Place Charitable Foundation.

Non-Profit

Business

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All content for Talking Charities is the property of Jo Edwards, Brad Ainsworth and Emma Shepherd and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Non-Profit

Business

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Timothy Syndrome Alliance (TSA) - Part 1

Talking Charities

16 minutes 59 seconds

11 months ago

Timothy Syndrome Alliance (TSA) - Part 1

Sophie Muir, Founder, Chair and all-round Super Woman talks to Jo Edwards about Timothy Syndrome; what it is, how it affects the lives of children and their families, and why spreading awareness is crucial to improving diagnosis, treatment and care.

TSA's vision is a world where shared knowledge and understanding lead to a cure for everyone with a CACNA1C genetic variant.

Their mission is to improve the diagnosis, treatment and care of individuals with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed.

Charity website: www.timothysyndrome.org

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