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The CF Together Podcast
CF Together
14 episodes
2 weeks ago
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast. Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more. On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
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All content for The CF Together Podcast is the property of CF Together and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast. Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more. On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
Show more...
Personal Journals
Business,
Society & Culture,
Non-Profit,
Health & Fitness,
Mental Health
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Living Longer with CF - A conversation on Dying Well.
The CF Together Podcast
21 minutes 44 seconds
1 month ago
Living Longer with CF - A conversation on Dying Well.
⚠️ Trigger Warning: This episode discusses themes of death, dying well, and end-of-life planning within the context of cystic fibrosis. These conversations can be deeply emotional and may be difficult for some listeners. Please take care while listening and pause or step away if you need to.In this powerful episode of the CF Together Podcast, Nardia, Jade and Louisa open up an honest, compassionate conversation about what it means to die well while living with cystic fibrosis. Together, they explore the importance of planning ahead, communicating wishes, finding comfort, and prioritising dignity and choice. With vulnerability and wisdom, they share personal reflections, fears, and practical insights along with the unexpected sense of peace that can come from speaking openly about end-of-life care.This episode gently encourages listeners to move toward conversations many avoid, helping us understand how talking about dying can shape the way we live, love, and support each other through the realities of CF.The views, experiences or comments shared in these stories are not medical advice and may not reflect opinions or beliefs of CF Together. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health. If you need any support, contact the National CF Support Line on 1300 CF HELP (23 4357). 
The CF Together Podcast
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast. Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more. On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.