In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonnet Syndrome (CBS), including medical misdiagnoses and the lack of available resources. They discuss the importance of believing and validating the experiences of those with CBS and their caregivers, as well as the urgent need for better awareness and diagnosis procedures within the medical community. The episode also highlights Mary Carmel's Light's efforts to support people with CBS and their families, advocate for a designated billing code for CBS, and educate through support groups, helplines, and community outreach.
For more information about Mary Carmel's Light or help with CBS visit https://marycarmelslight.com/ or call 704-389-0160
Contact me at info@cbsyndromepodcast.com
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.
For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org
The Charles Bonnet Syndrome Podcast Merchandise
https://cbsyndromepodcast.com/merchandise