Episode 54: Nancie Parker’s Journey with Charles Bonnet Syndrome, Advocacy, and Resilience

https://is1-ssl.mzstatic.com/image/thumb/Podcasts116/v4/ca/ca/79/caca79f9-ec1d-1772-d220-415ff010b31d/mza_5480578025115247207.jpeg/600x600bb.jpg

The Charles Bonnet Syndrome Podcast

Shaimond Foye

54 episodes

3 days ago

This podcast is for people with Charles Bonnet Syndrome (CBS), their caregivers, and allies. It's a space to offer awareness, information, support and hope. CBS is a condition that causes visual hallucinations in people who are blind or visually impaired. Host Shaimond Foye and occasional co-hosts interview people with CBS, their caregivers, ambassadors, PhDs, and medical professionals. We also explore broader topics relevant to the visually impaired community, providing helpful information and resources. Hosts and guests share their insights and research as we all work together to make a positive difference in the lives of people living with this condition.

Health & Fitness

RSS

All content for The Charles Bonnet Syndrome Podcast is the property of Shaimond Foye and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/44017278/7b1c4d2e19b85d41.jpg

Episode 54: Nancie Parker’s Journey with Charles Bonnet Syndrome, Advocacy, and Resilience

The Charles Bonnet Syndrome Podcast

1 hour 12 minutes 36 seconds

3 months ago

Episode 54: Nancie Parker’s Journey with Charles Bonnet Syndrome, Advocacy, and Resilience

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes guest Nancie Parker, a retired nurse who has firsthand experience with CBS. Nancie shares her journey of sudden vision loss due to aggressive glaucoma and her subsequent struggle with CBS. She discusses the challenges of coping with visual hallucinations, the importance of community support, and the role of advocacy in raising awareness about CBS. Nancie highlights her work with the CNIB in providing resources and support for individuals experiencing vision loss and CBS. This insightful conversation underscores the importance of acceptance, humor, and resilience in dealing with this condition.

Contact me at info@cbsyndromepodcast.com

For help with CBS call 1-704-389-0160

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org

The Charles Bonnet Syndrome Podcast Merchandise

https://cbsyndromepodcast.com/merchandise

Donate: https://ko-fi.com/cbsyndromepodcast