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The Data Frontier Podcast
Patricia Thaine
5 episodes
5 days ago
Host Patricia Thaine – co-founder of Private AI – sits down with engineers, data scientists, product leaders, domain experts, policymakers, and innovators pushing the boundaries of what's possible with data. They talk about real problems. The blockers slowing projects down. The gaps between prototype and production. What needs to change – and what's already working – when you're handling some of the most complex data out there. From NLP and privacy-preserving techniques to interoperability standards, AI workflows, and the infrastructure and governance challenges that come with scale.
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Technology
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All content for The Data Frontier Podcast is the property of Patricia Thaine and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Host Patricia Thaine – co-founder of Private AI – sits down with engineers, data scientists, product leaders, domain experts, policymakers, and innovators pushing the boundaries of what's possible with data. They talk about real problems. The blockers slowing projects down. The gaps between prototype and production. What needs to change – and what's already working – when you're handling some of the most complex data out there. From NLP and privacy-preserving techniques to interoperability standards, AI workflows, and the infrastructure and governance challenges that come with scale.
Show more...
Technology
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Season 1, Episode 4 | Who Owns Your Health Data?
The Data Frontier Podcast
49 minutes 40 seconds
1 month ago
Season 1, Episode 4 | Who Owns Your Health Data?

Who Owns Your Health Data?

The answer depends on where you live, and it's rarely the patient.

Jim St. Clair and Eric Sutherland join Patricia to unpack the legal gray areas, competing infrastructure models, and policy shifts shaping how health data flows (or doesn't).

Jim is a leader at the intersection of public health and technology, with over 25 years of experience in digital transformation. As former Executive Director of Linux Foundation Public Health, he expanded global collaborations in healthcare AI and patient identity management, partnering with WHO, UNDP, and national health agencies. He's shaped standards at HL7, IEEE, and ISO, and advises on AI workforce development, interoperability, and health IT modernization.

Eric is a Senior Health Economist leading the OECD's work in digital health, bringing together policy guidance for digital tools, integrated data, and responsible AI. He's accountable for evolving the OECD's Recommendation on Health Data Governance and supporting policy that balances data protection with timely access for patients, providers, researchers, and innovators.

They cover:

  • Why patient data ownership may become inevitable, not optional
  • The trade-offs between centralized, federated, and patient-intermediated architectures
  • How the European Health Data Space is approaching cross-border interoperability
  • What AI scribes and direct-to-consumer apps mean for data collection at the source
  • The case for "data solidarity," balancing individual rights with public health needs

Join us in taking a practical look at what needs to change before patients can actually control their own records.

The Data Frontier Podcast
Host Patricia Thaine – co-founder of Private AI – sits down with engineers, data scientists, product leaders, domain experts, policymakers, and innovators pushing the boundaries of what's possible with data. They talk about real problems. The blockers slowing projects down. The gaps between prototype and production. What needs to change – and what's already working – when you're handling some of the most complex data out there. From NLP and privacy-preserving techniques to interoperability standards, AI workflows, and the infrastructure and governance challenges that come with scale.