Dr. Kristy Johnson - 2024 Grant Awardee for the PMSF Innovation Grant

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The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope

Phelan-McDermid Syndrome Foundation

30 episodes

2 weeks ago

Stay up-to-date on the cutting edge of science and medicine in the Phelan-McDermid syndrome field! Dr. Lauren Schmitt, the Chief Science Officer of the Phelan-McDermid Syndrome Foundation (PMSF), sits down with top experts driving groundbreaking research, treatment, and care. These engaging conversations deliver the latest breakthroughs in a way that's easy to understand, keeping our PMSF community informed and empowered. You won't want to miss this!

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Dr. Kristy Johnson - 2024 Grant Awardee for the PMSF Innovation Grant - Part 2

The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope

32 minutes 50 seconds

7 months ago

Dr. Kristy Johnson - 2024 Grant Awardee for the PMSF Innovation Grant - Part 2

We are back with Part 2 of our interview with Dr. Kristy Johnson, winner of our 2024 PMSF Innovation Award!

In this episode, you will hear about the specifics about her project titled "ROSCO: A Novel Virtual Natural Communication Paradigm for Individuals with PMS". After detailing all the challenges associated with available measures of language and communication in Part 1, Dr. Lauren dives in to learn how Dr. Kristy is using a novel tool to capture communication in individuals with Phelan-McDermid syndrome! This novel tool is ALL home-based and hones in the unique ways each individual communicates.

And if you haven't tuned into Part 1 yet, we HIGHLY recommend starting there!

Interested in participating in ROSCO?

Email NDDLab@northeastern.edu to learn more about the study.

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