198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

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The Rare Life

Madeline Cheney

273 episodes

4 days ago

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.

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Parenting

Kids & Family

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198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

The Rare Life

1 hour 4 minutes 9 seconds

2 months ago

198: Ashley’s Story | A Year in the NICU, Impossible Choices + Complex Joy

From the moment Ashley learned she was carrying twins, her life took a turn she would never have imagined.

A diagnosis of twin-to-twin transfusion syndrome set off a chain of events: heart-wrenching decisions for her twin daughters, another complicated pregnancy ending in an emergency C-section at 24 weeks, and more than a year in the NICU with her son. Along the way, she wrestled through overwhelming grief, advocated for her son in a complex medical world, and discovered the ways in which love,light, and loss can coexist.

If you’ve ever lived through what felt like a never-ending medical crisis, or wondered if joy could return after devastation, Ashley’s story is for you.

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Access the transcript on the website here.

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