For many of us, this year has felt so heavy, from loss inthe community, to terrifying policy changes and the stress of uncertainty, to another emotional reality many didn’t expect: feeling disconnected from the people who love us but don’t understand our lives.
In this episode, we talk about the weight of this year,the grief and instability running through our community, and the complicated task of navigating family and friendships in a politically charged moment.
From boundaries to distancing to the exhaustion of tryingto explain ourselves, we share how parents are protecting the emotional well-being of themselves and their families, especially heading into the holidays.
And a big thanks to our sponsor for this episode, themakers of the incredible documentary, The Zebra & The Bear
Links:
Watch The Zebra & The Bear (coming tostreaming platforms the day after Thanksgiving!)
Listento the Current Political Climate + HowDisability Parents Feel About It.
Listento Medicaid Cuts | The Implications for OurFamilies and What We Can Do About It.
Listento Ep 154: Deaths in the Community.
Join The Rare Life newsletter andnever miss an update!
Fill out our contact form to joinupcoming discussion groups!
Follow us on Instagram @the_rare_life!
Donateto the podcast or Contactme about sponsoring an episode.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
And if you love this podcast, please leave usa rating or review in your favorite podcast app