Home
Categories
EXPLORE
Comedy
Society & Culture
True Crime
Sports
History
Business
Health & Fitness
About Us
Contact Us
Copyright
© 2024 PodJoint
00:00 / 00:00
Sign in

or

Don't have an account?
Sign up
Forgot password
https://is1-ssl.mzstatic.com/image/thumb/Podcasts123/v4/30/57/60/30576078-eb2b-fdc9-1573-59546beeffe3/mza_1497261461790431207.jpeg/600x600bb.jpg
The Rare Life
Madeline Cheney
273 episodes
4 days ago
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.
Show more...
Parenting
Kids & Family
RSS
All content for The Rare Life is the property of Madeline Cheney and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.
Show more...
Parenting
Kids & Family
https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/5730271/7551fc611b293c10.jpeg
Medicaid Cuts | Implications for Families Like Ours + What We Can Do About It
The Rare Life
26 minutes 43 seconds
4 months ago
Medicaid Cuts | Implications for Families Like Ours + What We Can Do About It

When the federal government slashes Medicaid funding, states are left to decide what happens next... and families like ours are left bracing for the fallout.

In this mini episode, Madeline and Alyssa talk about what these federal cuts really mean for families of disabled and medically complex children. They break down the impacton Medicaid HCBS waivers, what states can (and might) do next, and why the math just doesn’t add up for our kids.

They also get real about the mental health toll of uncertainty, the pain of being ignored, and what it means to build community resilience when the systems built tosupport you start to crumble.

If you’re feeling confused, furious, or just deeply tired, this conversation is for you.

Links:

Join The Rare Life newsletter and never miss an update!

Fill out our contact form to joinupcoming discussion groups!

Follow Alyssa at @caffeinated_caregivers!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

 

The Rare Life
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.