14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

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TheFifty1Percent with Shreya Patel-Parekh

Shreya Patel-Parekh

122 episodes

6 days ago

Welcome to thefifty1percent – where women over 30 come for honest health conversations. We move away from copying what others do and focus on your body, your circumstances and your environment, because no two women are the same. Expect expert insight and real women’s stories that help you make meaningful changes on your terms. No noise, no one-size-fits-all advice. Follow for episodes and sign up to our emails for updates on our events and much more. https://www.thefifty1percent.com/

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14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

TheFifty1Percent with Shreya Patel-Parekh

57 minutes 27 seconds

3 months ago

14 Years Until Diagnosis: Zainab Kaleemullah on Endometriosis and Advocacy

Zainab Kaleemullah, co-leader of the Endometriosis UK support group for Birmingham and the Black Country, shares her inspiring story of living with severe endometriosis and adenomyosis, 14 years before getting the right diagnosis. She opens up about the emotional and physical toll of the condition, and the barriers many face in getting the rightcare. Endometriosis affects 1 in 10 women, yet it is still widely misunderstood. This honest conversation is for anyone wanting to better understand the condition and support those affected.

Join us as we dive into the basics of endometriosis and why early diagnosis matters, and how cultural stigma and medical misinformation still stand in the way of effective treatment. This is an honest, informative conversation that sheds light on a condition that affects 1 in 10 women, yet is still so misunderstood.

What we Cover:(02:43): Zainab Kaleemullah’s background
(06:40): Why Early Diagnosis Matters
(08:49): What is Endometriosis?
(13:17): Why We Still Don’t Know What Causes Endometriosis
(21:02): Cultural Barriers to Treatment
(26:57): How Endometriosis Affects Organs Inside the Body
(33:16): Periods and Taboos in South Asian Communities
(38:21): The Importance of Speaking Openly About Menstrual Health
(45:20): When Endometriosis Is Misdiagnosed as Mental Illness or IBS
(49:38): Why Advocacy and Self-Education Are Vital for EndometriosisConnect With Shreya:LinkTree: https://linktr.ee/thefifty1percent

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Website: https://www.thefifty1percent.com/

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Endometriosis Support:

Website https://www.endometriosis-uk.org/support-group/36556

IG: https://www.instagram.com/endouk_bham_blackcountry/

Endometriosis UK: https://www.instagram.com/endometriosis.uk/
Facebook: https://www.facebook.com/groups/260221620794665

Book: https://www.amazon.co.uk/Endometriosis-Experts-Guide-Manage-Symptoms/dp/1785041479