Sarah talks about her son Remy and his experience with Total Colonic Hirschsprung's Disease. During the episode I also find out the family dynamic when it comes to Hirschsprung's, and why it was very surprising when the hospital dismissed Remy's chances of HD.

Around the mid-way point we chat about the Race for Every Child coming up on 18th October, which is a 5k event to raise money specifically for parents who need supplies such as Ostomy bags, sprays, wipes etc. - a very worthwhile cause indeed.

If you would like to donate please use the link below:-http://giving.childrensnational.org/goto/RemySchulzPlease

Enjoy the episodeFollow Sarah - @snovatt21