Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
I had a lovely talk with a new friend of mine, Hollis. Last Feburary her daughter was diagnoased with 22 learning disabilities. We talked about the pitfalls of testing, getting services, IEPs, curriculum and teaching styles, providing our kids with positive internal dialogue, and Hollis offers safe advice for challenging times. Of course, I weave in some stories of my own into our talk. If anything feels heavy for you at the moment, try to take a deep breath and for the next 30 minutes or so, take Hollis’s advice and let that sh*t go.
Walking with Freya
Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”
