Get your tissues ready! Bree and Grace talk to members of The Danny Did Foundation. The foundation raises SUDEP (Sudden Unexpected Death in Epilepsy) awareness in honor of four-year-old Danny Stanton, who passed away from a seizure. We discuss Danny’s story, what SUDEP is, and how to get involved and/or help. As hard as it can be to talk about, SUDEP needs to be talked about.
Link to The Danny Did Foundation: https://www.dannydid.org/about-us/
The SUDEP Institute: https://www.epilepsy.com/about-us/our-programs/about-sudep-institute
The Danny Did Foundation on Instagram: @danny_did_foundation_ and Twitter: @DannyDidOrg
People Against Mortality in Epilepsy (PAME): https://www.pameonline.org
SUDEP fast facts: 1 in 1,000 people with epilepsy die from SUDEP every year, people with uncontrolled, convulsive, and nocturnal seizures are at the highest risk, it is most common in young adults, and seizure control is the biggest defense against SUDEP.
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