The Caregiver Marathon You Never Signed Up For – and How to Survive It This Holiday Season with Dr. Wolfgang Spangernberger   The holidays are often described as a time of joy, togetherness, and rest—but for caregivers, they can feel like yet another exhausting stretch in an already relentless journey.   In this episode of Dementia Caregivers Corner Podcast, Juliah is joined by Dr. Wolfgang Spangernberger, author of The Unexpected Marathon and The Holiday Survival Guide for Caregivers, to explore why caregiving stress intensifies during the festive season—and how caregivers can survive it with compassion, boundaries, and self-preservation.   Together, we discuss caregiver guilt, burnout warning signs, difficult family dynamics, and the emotional weight carried by those who quietly hold everything together. This episode offers practical tools, mindset shifts, and gentle reminders that caregiving is not about perfection but presence.   Whether you’re caring for someone with dementia or supporting a caregiver you love, this conversation offers reassurance, validation, and hope during the holiday season.   3 Main Points Discussed   Caregiving as an Unexpected Marathon Why long-term caregiving requires pacing, rest, and realistic expectations, especially during the holidays.   Burnout, Guilt, and Boundaries Recognising early signs of burnout, understanding caregiver guilt, and learning how to set gentle but firm boundaries.   Family Dynamics and Feeling Unseen Navigating criticism, lack of appreciation, and complex family relationships while protecting emotional wellbeing.   3 Key Takeaways   You can’t pour from an empty cup Burnout often creeps in quietly, rest and support are not luxuries but necessities.   Caregiving is about presence, not perfection Showing up with compassion matters more than doing everything “right.”   Boundaries are acts of care, not selfishness Saying no, asking for help, and resetting expectations protect both the caregiver and the relationship.   Resources Mentioned (Books) The Unexpected Marathon: Challenges for Your Heart The Holiday Survival Guide for Caregivers. Visit https://wolfgangspangenberger.com/sanity/ to download a free copy of The Holiday Survival Guide for Caregivers — available for a limited time only (2 weeks).

Episode Title: I Can’t Smell My Coffee or Taste My Food Anymore: What’s Dementia Got to Do with It? Episode Summary: In this episode of the Dementia Caregiver’s Corner Podcast, we explore a lesser-known but deeply important aspect of dementia: olfactory impairment also known as the loss of smell.   My guest, Duncan Boak, co-founder and CEO of SmellTaste, the UK’s leading charity for people affected by smell and taste disorders, shares his lived experience of losing his sense of smell after a head injury. Together, we discuss the critical links between smell loss and dementia, safety concerns, emotional wellbeing, and the vital support networks available to those living with sensory changes.   Duncan also talks about his contribution to the new book A New Approach to Dementia: Examining Sensory and Perceptual Impairment, shedding light on how changes in smell and taste impact older adults and people living with dementia.   3 Main Discussion Points   His Personal Journey – Duncan shares his lived experience of losing his sense of smell after a severe head injury and how it shaped his advocacy work.   Smell, Memory & Dementia – Exploring the link between olfactory impairment, taste changes, and dementia, including risks, hallucinations, and daily challenges.   Support & Advocacy – The work of Smell Taste and Duncan’s contribution to a new book highlighting sensory impairments in dementia care.   3 Key Takeaways   Smell is more than a sense – it shapes memory, emotions, safety, and quality of life.   Olfactory impairment is common in dementia but often overlooked, leading to risks like unsafe eating, missed dangers (fires, gas), or hallucinations.   Support is available – TasteSmell provides resources and advocacy for people with smell and taste disorders, including those living with dementia and their caregivers.   Resources Mentioned https://www.smelltaste.org.uk/team/duncan-boak/   A New Approach to Dementia: Examining Sensory and Perceptual Impairment (a Well researched book edited by Professor. Andrea Tales, Professor. Jan Kremláček and Dr. Emma Richards   

Episode Title: Early Signs of Dementia, Family Challenges, and Preparing for Memory Care with Shari Ross   Episode Summary: Making decisions about senior living and memory care is one of the toughest challenges families face when supporting a loved one with dementia. In this episode, I’m joined by Shari Ross, author of Senior Living Made S.I.M.P.L.E.™ and founder of the brand of the same name. Shari has guided countless families through this emotional journey, providing clear steps and compassionate advice to help them navigate caregiving, safety, and memory care choices with confidence.   We discuss how families can recognise early signs of dementia, manage safety concerns at home, navigate disagreements between siblings, and prepare both emotionally and financially for memory care. Shari also shares practical strategies for reducing caregiver burnout and explains the myths and realities of memory care communities.    Main Points Discussed   Recognising early signs of dementia and the first practical steps families should take when memory concerns appear.   When home care may no longer be enough and how to address safety risks before a crisis occurs.   Family dynamics, myths, and finances — navigating disagreements, preparing for costs, and understanding what memory care really means.   Key Takeaways   Start early — when memory lapses appear, seek assessment and make a plan rather than waiting for a crisis.   Caregiver wellbeing matters — stress and burnout are warning signs that more support is needed.   Memory care isn’t “giving up” — the right community can provide safety, engagement, and dignity for loved ones living with dementia.    Listener Resources for Senior Living Made S.I.M.P.L.E. 🌐 Website: www.seniorlivingmadesimple.com (Listeners can also directly book Senior Living Coaching calls here.) 📘 Book – Senior Living Made S.I.M.P.L.E.™ Available on Amazon, Walmart.com, Barnes & Noble.com, and Goodreads. o            Amazon – Book o            Amazon – Workbook 🛍️ Etsy Shop – SeniorLivingShop Downloadable checklists, toolkits, and resources: https://www.etsy.com/shop/SeniorLivingShop Instagram: (1) Instagram Facebook: Facebook  

Episode Title: Having Compassion And Understanding for Those Living With Dementia - Nduduzo, South Africa   Repost. An enlightening and touching episode this week as your Host Juliah Ratladi talked down with Nduduzo, from Kwazulu-Natal in South Africa.   Nduduzo discovered his Grandmother was unwell when he came home for his mother’s funeral and soon discovered that she was living with dementia. He decided to do something really special and gave up his work to look after his Grandma because he felt he owed it to her to give back after she had looked after him.   Nduduzo has no training, but did extensive research into the needs of, and care for, those with dementia and his compassion and patience is inspiring.   Grandma also joins the call so you will get an opportunity to see what it takes to patiently work with someone who doesn’t always understand the world around them.   Find Nduduzo and follow along with his journey here:   TikTok: https://www.tiktok.com/@nduduzo_kay   Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:   Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D   LinkedIn:   https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/   Twitter:   https://twitter.com/DementiaCorner   Podcast Facebook Page:   https://www.facebook.com/profile.php?id=100087493920768   Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com   Dementia caregivers` Corner Podcast is available on the following platforms   Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347    Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT   Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530   TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   iHeart Radio: https://iheart.com/podcast/125013574   Player FM: https://player.fm/series/3517995    Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017

Episode Summary: Most families don’t fully understand dementia until it affects their own loved ones. For award-winning documentary filmmaker Kimberley Littlemore, that moment came when both her parents were diagnosed with Alzheimer’s disease. Realising how little she knew about dementia—and how few films captured the lived experience—she turned the cameras on her parents’ journey, creating a powerful series that blends personal stories with expert insights.   In this conversation, Kimberley opens about her parents’ diagnosis, what she learned as both a daughter and a filmmaker, and why films based on lived experience are so vital in raising awareness and reducing stigma around dementia. She also reflects on her work with the BBC, her contribution to a new book on dementia and sensory changes and offers advice on which mediums—film or documentary—might create the biggest impact in regions like Africa where dementia is still widely misunderstood.   Main Points Discussed Kimberley’s journey from filmmaker to daughter documenting her own parents’ Alzheimer’s diagnosis and lived experience.   The importance of sensory and perceptual changes in dementia, and her contribution to A New Approach to Dementia.   A candid discussion on the impact of films vs. documentaries in creating dementia awareness in Sub-Saharan Africa.   Key Takeaways Lived experience matters — Films showing real family journeys can raise awareness and break stigma in ways textbooks and statistics cannot.   Dementia isn’t just memory loss — Sensory changes and behavioural symptoms are often overlooked but deeply affect daily life.   Storytelling is powerful — Whether through documentaries or feature films, visual storytelling helps families, caregivers, and communities better understand dementia.   Resources Mentioned Visit https://pocketmedic.org/dementia to watch Kimberley’s parents’ raw, real-life dementia journey unfold on film. Still Alice (Drama-Film) A New Approach to Dementia: Examining Sensory and Perceptual Impairment Slipping Away: One Man`s Battle with Alzheimer’s` Disease  

In this episode of Dementia Caregivers Corner, we’re joined by Dr. Éthelle Lord, a leading expert in dementia care, Master Dementia Coach, and creator of the Transactional Dementia Intelligence (TDI) model. We explore the critical challenges in long-term care, including staff-to-resident ratios and communication gaps between families and care providers, and discuss how these impact both residents and caregivers. Dr. Lord also explains her Lord’s Theory on the psychology of the dementia brain, and how new care models like TDI are shaping better outcomes in dementia care.   Key Points Discussed   Staffing Challenges: How low staff-to-resident ratios affect residents’ emotional and physical care.   Communication Gaps: The importance of effective communication between families and care teams.   Innovative Care Models: Introduction to the Transactional Dementia Intelligence (TDI) model and how it differs from traditional approaches.   Key Takeaways   Consistent staffing improves relationships, understanding, and wellbeing for both residents and caregivers.   Engaging families and caregivers in care planning enhances quality of care and reduces stress.   Learning and applying new models, like TDI, helps approach dementia care holistically and personally.   Let me take this time and Thank you, our dear listeners, for tuning in to this episode! If you enjoyed our conversation with Dr Lord or are passionate about dementia care, please consider leaving a review and sharing this episode with someone who might benefit from it. Your support helps us reach more people and raise awareness about dementia-related issues

Repost: In this inspirational episode Juliah sat down with Andrias Mungundu, an newly registered nurse and an advocate for dementia rights and education in Namibia.   Since his mother’s experiences with dementia Andrias has worked with organisations and government to overcome the stigma of dementia in African communities where people are often accused of witchcraft.   His mother’s experiences with lack of understanding and treatment had massive impacts on the family, but Andrias was determined to support his family   He espouses very human and sympathetic ways to care for people with dementia, arguing that they need the same sort of patience we have for small children as they need to be cared for how they cared for their families in life.   So listen in and be inspired by Andrias and his journey.   Find Andrias here:   LinkedIn:   https://www.linkedin.com/in/mangundu-andrias-54b91a246/   Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:   Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D   LinkedIn:   https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/   Twitter:   https://twitter.com/DementiaCorner   Podcast Facebook Page:   https://www.facebook.com/profile.php?id=100087493920768         Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com   Dementia caregivers` Corner Podcast is available on the following platforms   Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347    Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT   Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530   TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   iHeart Radio: https://iheart.com/podcast/125013574   Player FM: https://player.fm/series/3517995    Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017

Episode Summary:   In this episode of Dementia Caregiver’s Corner, Donna, daughter of dementia activist Agnes Houston, shares her experience supporting her mother through early-onset Alzheimer’s. She reflects on the early signs, challenges, and the emotional journey of caregiving, offering insights into maintaining family bonds and navigating gaps in support systems.   3 Key Points:   Recognizing early signs matters: Identifying behavioral changes early can lead to timely diagnosis and better planning for care.   Caregiving shapes relationships: Dementia care can both challenge and strengthen family bonds when approached with compassion and communication.   Support systems are crucial: Families often face gaps in formal support, making community, healthcare, and social support vital.   3 Takeaways for Listeners:   Observe and document early behavioral changes to help with timely dementia diagnosis.   Maintaining patience, empathy, and communication strengthens caregiver-patient relationships.   Seek support from family, community, and professionals to prevent caregiver burnout and improve the quality of care.   This episode provides insight, practical advice, and hope for families, caregivers, and anyone navigating dementia care.   #dementiacare, #Alzheimerscare, #early-onsetdementia, #caregiverssupport #caregivertips, #BPSD, #familycaregiving #SensoryImpairment   If you found this episode helpful, please leave a review and share it with someone who might benefit. Your support helps raise awareness about dementia and improves support for caregivers worldwide.

Episode Summary In this episode of Dementia Caregivers’ Corner Podcast, we explore the often-overlooked sensory and perceptual challenges faced by people living with dementia. Our guest, Agnes Houston MBE, diagnosed with early-onset Alzheimer’s in 2006, shares her lived experience and international research through her Churchill Fellowship and her books Talking Sense and A New Approach to Dementia. Agnes opens up about how sensory changes affect daily life, why the voices of people with lived experience matter, and how her work continues to shape dementia care and awareness worldwide.   3 Key Topics Discussed   The sensory and perceptual challenges people with dementia face, from sight and sound to touch and taste. Agnes Houston’s lived experience, research journey, and recognitions such as the MBE and Churchill Fellowship. The importance of including voices of people with lived experience in dementia research and care practices.   3 Takeaway Points   Sensory changes are a significant but often overlooked aspect of dementia that can greatly affect daily life. Practical strategies—like awareness, family support, and informed care—can help manage these challenges. Empowering people with dementia to share their experiences is vital for shaping better services, understanding, and policies.   Resources Mentioned A New Approach to Dementia: Examining Sensory and Perceptual Impairment. Agnes Houston`s eBook: Talking Sense: Living With Sensory Changes and Dementia https://podcasts.apple.com/nz/podcast/honouring-jennifer-josey-1944-2024-a-journey/id1710778347?i=1000686624853

Episode Summary   I am naturally loud, anyone who listens to my podcast or knows me personally can attest to that. But in this episode, my loudness mellowed. My guest brought peace, warmth, and love that were indescribable. She may not know it, but just by chatting with her, she brought me to a place of calm and stillness. In this episode, I sit down with Sharon Lukert, a retired Buddhist chaplain and author of Until My Memory Fails Me. Sharon shares her deeply personal journey of living with Mild Cognitive Impairment (MCI) while drawing from over 20 years of experience supporting others through illness, grief, and end-of-life care. Together, we explore what it feels like to notice the first signs of memory loss, the emotional weight of seeking a diagnosis, and the everyday practices that make life meaningful. This heartfelt conversation also looks at the role of spirituality, mindfulness, and community in coping with cognitive decline, not only for those directly affected but also for their families and caregivers. Sharon’s story is one of honesty, resilience, and compassion, offering hope and wisdom for anyone navigating similar challenges.   Key Takeaways Early signs of MCI can be subtle but emotionally impactful, prompting reflection and the need for understanding. Practical routines and coping strategies help maintain independence and ease daily life with cognitive changes. Spirituality and faith can provide grounding, hope, and strength in navigating memory loss. Connection and community are vital for both individuals and families, offering support, resilience, and shared meaning.   Key Topics Discussed Sharon’s personal experience of living with Mild Cognitive Impairment. The emotional journey of seeking and receiving a diagnosis. The role of spirituality and interfaith chaplaincy in dementia care. Inspiration and message behind Sharon’s book Until My Memory Fails Me.   Resources Mentioned Sharon Lukert`s book " Until My Memory Fails Me" #USA https://podcasts.apple.com/nz/podcast/living-with-dementia-dallas-dixon-reveals-what-real/id1710778347?i=1000702828681    #USA https://podcasts.apple.com/nz/podcast/repost-c-o-r-e-c-a-r-e-principles-in-dementia-care/id1710778347?i=1000704567569 #Australia https://podcasts.apple.com/nz/podcast/honouring-jennifer-josey-1944-2024-a-journey/id1710778347?i=1000686624853 #UK   Connect with Sharon from the following platforms; Website: https://www.sharonlukert.com/ LinkedIn: https://www.linkedin.com/in/sharon-lukert-36266912/   If you are passionate about MCI or dementia-related issues, please share this episode with someone who might benefit from it. Until then, I’ll see you in the next episode.  

Repost: In this poignant episode of "Dementia Caregiver's Corner," host Juliah Ratladi is joined by Lynnette Lee, author of "Slipping Away: One man's battle with Alzheimer's," for a heartfelt conversation about the journey of caregiving and resilience in the face of Alzheimer's disease.   Join Juliah and Lynnette as they delve into Lynnette's personal story, beginning with her father's diagnosis and the challenges she encountered in accessing support and resources. Through candid anecdotes and heartfelt reflections, Lynnette shares the highs and lows of her caregiving journey, offering listeners a glimpse into the complexities of caring for a loved one with dementia.   Despite the challenges, Lynnette also highlights the brighter moments she experienced while spending time with her father, emphasizing the power of love, connection, and cherished memories amidst the difficult realities of Alzheimer's.   Tune in to "Dementia Caregiver's Corner" for an intimate and inspiring conversation that illuminates the journey of caregiving, celebrating the resilience and strength of caregivers like Lynnette Lee. Learn from her experiences, find solace in shared stories, and discover the transformative power of love in the face of adversity.   Find Lynnette here:   X https://x.com/LynnetteLee_Alz?t=nUKEta5ccmwWnmGlIqPz_g&s=09   Find her book here:   https://www.amazon.com/Slipping-Away-mans-battle-Alzheimers-ebook/dp/B097H7Y15W   Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media:   Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D   LinkedIn:   https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/   Twitter:   https://twitter.com/DementiaCorner   Podcast Facebook Page:   https://www.facebook.com/profile.php?id=100087493920768   Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com   Dementia caregivers` Corner Podcast is available on the following platforms   Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347    Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT   Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530   TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml   iHeart Radio: https://iheart.com/podcast/125013574   Player FM: https://player.fm/series/3517995    Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017

Episode Summary In this insightful conversation, Juliah is joined by David Knight, Advanced Clinical Practitioner and Independent Prescribing Optometrist, UK, to explore how vision and perception are affected by dementia. Using real-life examples and clinical experience, David breaks down how the brain and eyes work together—and how dementia disrupts this connection. From the differences across dementia types to practical home adjustments, this episode helps caregivers and professionals better understand visual challenges in dementia and how to address them.   4 Key Topics Discussed: How dementia affects visual processing – explained through the case of Jennifer and the wristwatch vs. clock scenario.   Differences in visual symptoms across dementia types – including Alzheimer’s, Lewy Body, and frontotemporal dementia.   The connection between eyesight and cognitive decline – does poor vision contribute to dementia, or vice versa?   Vision assessments and accessibility – including tips for clinicians and caregivers on evaluating visual function in individuals with cognitive impairment.   4 Key Takeaways: Vision and the brain are tightly linked—dementia can distort visual interpretation even when the eyes are healthy.   Types of dementia affect vision differently—for example, Lewy Body dementia often causes visual hallucinations, while vascular dementia may affect contrast or depth perception.   Misinterpreting visual signs can be risky—caregivers might mistake visual dysfunction for stubbornness, which can lead to frustration or accidents.   Small home adaptations can make a big difference—like lighting, contrast, and simplifying visual clutter to support safety and independence. #dementia #vision loss #Lewybodydementia #sensoryperception #dementiacare #optometristinterview #cognitivedecline   Resources Mentioned A New Approach to Dementia: Examining Sensory and perceptual Impairment   https://podcasts.apple.com/nz/podcast/designing-for-dementia-how-smart-technology-and/id1710778347?i=1000715402699   https://podcasts.apple.com/nz/podcast/honouring-jennifer-josey-1944-2024-a-journey/id1710778347?i=1000686624853   Share this episode with a friend, colleague, or family caregiver who may benefit from learning more about sensory changes, visual dysfunction, smart technology, and environmental design in dementia care.   If you found this episode helpful, please follow, rate, and review the Dementia Caregivers’ Corner Podcast on your favourite listening platform.  

Episode Summary: In this episode of the Dementia Caregivers’ Corner Podcast, we’re joined by Allyson Schrier, a passionate dementia care advocate, educator, and co-founder of Zinnia TV, a tech platform designed to support individuals living with dementia and reduce stress for caregivers. Allyson shares her personal journey as a caregiver for her husband and how that experience inspired her to launch a dementia-friendly technology company at the age of 60. We explore: How Zinnia TV uses video content to enhance engagement and well-being Strategies for making technology accessible and user-friendly for older adults Insights into compassionate caregiving practices The challenges and rewards of launching an AgeTech company Inclusivity and cultural relevance in dementia care for immigrant families The future of AgeTech and the role of innovation in dementia support   Whether you’re a caregiver, healthcare provider, or simply curious about how technology can support dementia care, this episode offers valuable insights into the evolving landscape of compassionate, tech-enabled caregiving.   4 Key Topics Discussed The origin and purpose of Zinnia TV A platform created to engage individuals with dementia through tailored video content.   Integrating technology in elder care How to make digital tools accessible for older adults and their caregivers.   Compassionate caregiving practices Practical approaches to offering care with empathy and understanding.   The future of AgeTech and dementia care Trends, innovations, and what lies ahead for tech solutions in dementia support.   4 Key Takeaways Personal experience can drive impactful innovation Allyson’s journey as a caregiver for her husband inspired the creation of Zinnia TV, showing how lived experience can lead to meaningful solutions in dementia care.   Technology can be both simple and supportive Zinnia TV demonstrates that digital tools for people with dementia can be accessible, user-friendly, and effective in reducing stress and improving quality of life.   Compassion is at the heart of dementia care Compassionate caregiving strategies not only support those living with dementia but also protect the emotional well-being of caregivers.   Cultural inclusivity is essential in AgeTech For tech solutions like Zinnia TV to be effective across diverse communities, they must reflect the cultural, linguistic, and social realities of users—including immigrant and African families.   Resources Mentioned A New Approach to Dementia: Examining Sensory and Perceptual Impairment Professor Andrea`s Episode Link Below https://podcasts.apple.com/nz/podcast/designing-for-dementia-how-smart-technology-and/id1710778347?i=1000715402699   Share this episode with a friend, colleague, or family caregiver who may benefit from learning more about vision dysfunction and cognitive decline   If you found this episode helpful, please follow, rate, and review the Dementia Caregivers’ Corner Podcast on your favourite listening platform.

Episode Summary: In this episode, Professor Andrea Tales, joins us to explore how dementia affects more than just memory, focusing on the often-overlooked sensory and perceptual changes. We discuss how smart technology, and thoughtful environmental design can better support people living with dementia, reduce distress, and improve quality of life. Whether you're a caregiver or professional, this conversation offers practical insights and new ways to think about dementia care. Key Topics: Sensory and Perceptual Changes in Dementia – Understanding how visual dysfunction and other sensory issues impact behaviour and daily life.   Environmental Design – How adapting home and public spaces can improve safety, familiarity, and independence for people living with dementia.   SMART Technology in Dementia Care – The role of devices like Alexa and clocks in reducing anxiety and supporting routine, communication, and calmness.   Shifting from Trial-and-Error to Personalised Support – Helping caregivers make informed choices about technology and care strategies based on the individual’s needs.   Key Takeaways: Dementia isn’t just about memory loss, sensory changes like vision, balance, and perception are equally important but often overlooked. These changes can lead to distress, confusion, and safety risks if not properly addressed.   Simple environmental changes, like adjusting colours, lighting, or layout—can make a big difference in helping people with dementia feel safe and oriented.   SMART technologies can enhance care when introduced at the right time and tailored to the person’s stage and needs, but they should support, not replace, human connection.   Caregivers benefit most when they move away from random solutions and instead use evidence-based, personalised strategies that truly fit their loved one’s situation.   Resources Mentioned -A New Approach to Dementia: Examining Sensory and Perceptual Impairment -Wendy Mitchell`s books   Share this episode with a friend, colleague, or family caregiver who may benefit from learning more about sensory changes, smart technology, and environmental design in dementia care. If you found this episode helpful, please follow, rate, and review the Dementia Caregivers’ Corner Podcast on your favourite listening platform.    

In this heartfelt episode, we pay tribute to Jennifer Mavis Josey, affectionately known as Jen, who passed away in October 2024 from mixed dementia. Shellie Josey, Jen’s only daughter, joins us to reflect on her mum’s life, their family’s caregiving journey, and how they’ve been coping since her passing.   We explore Jen’s background, her role as a mother and sister, and the qualities that made her so special. Shellie shares insights into the early symptoms of dementia, the family’s initial struggles, and how they learned to navigate life with her diagnosis. She discusses the importance of family unity, the challenges of accessing social care, and the value of maintaining friendships for those living with dementia.   The episode also highlights the family’s commitment to honoring Jen’s wish to remain at home, the adjustments they made to accommodate her needs, and Shellie’s journey toward finding purpose after her mother’s death.   Shellie concludes with advice for families caring for parents with dementia, offering encouragement and wisdom to those on a similar path.   This episode is a celebration of Jen’s legacy and a source of inspiration and support for caregivers and families worldwide.   Key Takeaways from This Episode:   Family Unity is Vital Caring for a loved one with dementia requires strong family collaboration and support. Shellie emphasized how working together as a family helped them navigate the emotional and practical challenges of Jen’s dementia journey.   Early Symptoms Often Go Unrecognized Many families, including Jen’s, are unaware of dementia until it directly impacts them. Recognizing unusual behaviors and seeking timely medical advice is crucial for early diagnosis and better care planning.   The Importance of Honoring Wishes Jen’s wish to remain at home rather than move to a care home required significant adjustments and sacrifices. Shellie’s story highlights the importance of respecting a loved one’s preferences and finding ways to fulfill them despite challenges.   Friendships Play a Key Role Maintaining relationships is essential for individuals living with dementia. Shellie shared how Jen’s friends continued visiting her, providing comfort and connection. Encouraging friendships, even in advanced stages, can greatly enhance a person’s quality of life.   Some resources mentioned Alzheimers.org.uk https://podcasts.apple.com/nz/podcast/navigating-the-journey-a-daughters-tale-of/id1710778347?i=1000650588431   Enjoyed this episode? Remember to subscribe, leave a review and share it with someone who might benefit!    

In this episode of Dementia Caregivers` Corner Podcast, I’m joined by Katie Fournier, LPN, CDP from Ember Holistic Care in the USA as we continue our discussion on non-medical approaches to managing dementia-related behaviors. Building on our previous conversation with co-founder Shari Flight, we explore effective holistic strategies that prioritize compassionate care before turning to medication. What we cover in this episode: Effective holistic approaches for managing dementia-related behaviours. How to personalize non-medication strategies for each individual. Common misconceptions about holistic dementia care and how to address skepticism. The benefits of mindfulness and meditation for individuals living with dementia and their caregivers.   Plus, we end with a special guided meditation designed to bring calm and connection.   Key Takeaways Holistic Approaches Can Reduce the Need for Medication – Non-medical interventions, such as sensory stimulation, music therapy, and environmental adjustments, can effectively manage dementia-related behaviors before turning to medication. Personalized Care is Essential – Dementia affects each person differently, so tailoring interventions to individual needs, preferences, and history leads to better outcomes and improved well-being. Mindfulness & Meditation Benefit Both Caregivers and Individuals with Dementia – Practices like guided meditation and breathing exercises can reduce stress, enhance emotional connection, and create moments of calm for both caregivers and those they support. Resources Mentioned https://podcasts.apple.com/nz/podcast/alternative-approaches-to-combat-dementia-related-behaviours/id1710778347?i=1000653429777   #DementiaCare #CaregivingTips #MindfulCare #GuidedMeditation #DementiaAwareness #HolisticHealth #FamilyCaregiver #ElderCare #DCCP #MentalHealthForCaregivers #MentalHealth  If you enjoyed our conversation or are passionate about dementia care, please consider leaving a review and sharing this episode with someone who might benefit from it. Your support helps us reach more people and raise awareness about dementia-related issues.

Episode Summary: In this episode, I am joined by Carlo Romero, a medical professional from a rehabilitation facility in the UK. Together, we explore what rehabilitation means in the context of dementia—how it helps individuals maintain their independence and well-being.   We discuss the challenges people living with dementia and their caregivers face when accessing rehabilitation and, most importantly, how these challenges can be addressed to improve their quality of life.   Key topics include:1. What sparked Carlo’s interest in dementia rehabilitation2. The role and benefits of rehabilitation in dementia care3. Challenges in providing rehabilitation, especially for those with severe communication difficulties4. The importance of multidisciplinary collaboration in dementia rehabilitationReal-world examples of successful rehabilitation strategies5. Key improvements needed in healthcare and social care services   Key Takeaways: 1. Rehabilitation supports independence – Even in dementia, rehabilitation can help maintain functional abilities and improve well-being.2. Communication challenges impact rehabilitation – People with dementia who struggle with speech often miss out on vital rehabilitation, highlighting the need for alternative approaches.3. Multidisciplinary teamwork is crucial – Collaboration between healthcare and social care professionals can enhance rehabilitation outcomes.4. Dementia rehabilitation needs improvement – Better training, resources, and awareness can help make rehabilitation more accessible and effective.   Resources Mentioned World Health Organization  Dementia UK Dementia Friends What I Wish People Knew about Dementia - Wendy Mitchell Somebody I Used to Know - Wendy Mitchell Tune in to gain insights into dementia rehabilitation and how we can better support individuals living with dementia.

Episode Summary: In this thought-provoking episode of the Dementia Caregivers Corner Podcast, host Juliah is joined by Dr Hannah Hussain, a Health Economist at the Office of Health Economics in London. Dr Hussain, who holds a PhD in health economics from the University of Sheffield and is a qualified pharmacist, shares her insights into the challenges that Black, Asian, and Minority Ethnic (BAME) communities face in accessing dementia care. From cultural stigma and late diagnoses to language barriers and the overlooked role of unpaid carers, this episode dives deep into the structural and social factors that limit access to timely and culturally sensitive dementia support. Dr Hussain also highlights the importance of inclusive research and culturally competent care homes in addressing these disparities. Key Topics Discussed: Barriers to dementia diagnosis and care in BAME communities Economic impact of unpaid caregiving on families and the healthcare system The need for culturally competent dementia services and inclusive research Key Takeaways: Cultural stigma and expectations in BAME communities can discourage families from seeking formal dementia care, contributing to late diagnoses and hidden burdens. Unpaid carers in BAME households save the NHS substantial costs but often lack adequate support and recognition. Culturally competent care and language access are essential for improving dementia services for diverse communities. Resources Mentioned https://www.dementiaresearcher.nihr.ac.uk/blog-challenges-of-dementia-care-for-ethnic-minorities-in-the-uk/ https://www.dementiaresearcher.nihr.ac.uk/blog-coping-with-distress-the-strength-of-caregivers/ https://www.dementiaresearcher.nihr.ac.uk/blog-the-economics-of-dementia/      

Repost: This week sees the return of popular guest Isabel Baker, a retired clinical nurse consultant  and author from Australia who has more fascinating insights to share about her work, and what she learned in her time as a dementia caregiver and how she helps others learn what is truly needed by those with dementia. The conversation begins with the fascinating insight that many dementia symptoms can be caused by other issues and moves on to a discussion of Isabel’s C.O.R.E.C.A.R.E principles of caring for those with dementia. Each letter is an important insight on its own, but it truly all about treating each person as an individual. So, listen in, and learn about how to take care of the individual. Find Isabel on LinkedIn here: https://www.linkedin.com/in/isabel-baker-4770466b Find more information about Isabel and her work here: https://isabelbaker.net/ Follow Juliah Ratladi/Dementia Caregivers Corner Podcast on social media: Instagram: https://instagram.com/dementiacaregiverscorner?utm_source=qr&igshid=MzNlNGNkZWQ4Mg%3D%3D LinkedIn: https://www.linkedin.com/in/juliah-ratladi-dementia-care-awareness/ Twitter: https://twitter.com/DementiaCorner Podcast Facebook Page: https://www.facebook.com/profile.php?id=100087493920768 Do you want to be a guest? email us on: dementiacaregiverscorner@gmail.com Dementia caregivers` Corner Podcast is available on the following platforms Apple Podcast: https://podcasts.apple.com/us/podcast/dementiacaregiverscorners-podcast/id1710778347 Spotify: https://open.spotify.com/show/6JeVOQteK08zsc7PTkRNTT Podbean: https://feed.podbean.com/dementiacaregiverscorner/feed.xml Amazon Music/Audible: https://music.amazon.com/podcasts/c6e17ee2-f194-4eae-b906-a854078dd530 TuneIn/Alexa: https://feed.podbean.com/dementiacaregiverscorner/feed.xml iHeart Radio: https://iheart.com/podcast/125013574 Player FM: https://player.fm/series/3517995  Podchaser: https://www.podchaser.com/podcasts/dementiacaregiverscorners-podc-5494017    

Episode Summary: In this episode of Dementia Caregivers` Corner Podcast, Juliah speaks with Mr. Dallas Dixon, who is living with dementia. Together, they explore how different stakeholders, such as policymakers, healthcare professionals, and caregivers can better support people with dementia. Mr. Dixon shares his perspective on the misconceptions and misunderstandings surrounding dementia and discusses the aspects of identity that he believes remain untouched by the condition, which he attributes to his faith. He also talks about his journey as an author, including the inspiration behind his books, particularly The Dancing Dementia Dude, and the messages he hopes to share with the world. Key Takeaways from This Episode The importance of well-structured dementia policies that truly address the needs of those living with the condition. The need for better education and awareness among healthcare professionals and caregivers to improve dementia care. The power of faith, personal identity, and storytelling in reshaping the narrative around dementia. Resources Mentioned John: Chapter 14 verse 26 World Health Organization Teepa Snow https://podcasts.apple.com/nz/podcast/shes-brave-life-after-early-onset-alzheimers-claimed/id1710778347?i=1000679985387 If you found this episode helpful, please leave a review, and share with someone who might benefit from it. This helps us to reach more people and create more awareness about dementia related issues.