The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain.
"Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff
Be Kind. Be Gentle. Be A Bad Ass.
Hosted on Acast. See acast.com/privacy for more information.
The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain.
"Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff
Be Kind. Be Gentle. Be A Bad Ass.
Hosted on Acast. See acast.com/privacy for more information.
Keywords
TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness
Summary
In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the treatment, the subsequent negative effects she experienced, and the challenges of navigating the medical system. The conversation highlights the importance of patient advocacy, community support, and the role of technology in managing health. Jordan emphasizes the need for awareness and understanding of the risks associated with TMS and the importance of self-care and mindfulness in coping with chronic illness.
Takeaways
TMS is a procedure that uses magnetic fields to stimulate brain activity.
Jordan experienced significant negative effects from TMS, including brain injury symptoms.
Medical gaslighting is a common issue faced by patients seeking help.
Community support is crucial for those dealing with chronic illness.
Technology, including AI, can assist in managing health and communication.
Self-care and mindfulness are essential for coping with chronic illness.
Advocacy is important to raise awareness about the risks of TMS.
Family planning can be complicated by health issues and uncertainties.
Understanding the impact of chronic illness on daily life is vital.
The journey of healing is ongoing and requires patience and support.
Titles
The Hidden Risks of TMS: A Personal Journey
Navigating the Medical Maze: Jordan's TMS Experience
Sound bites
"I was called headache girl for a year."
"I want to share my story to help others."
"I have to protect myself and my energy."
Chapters
00:00 Introduction to TMS and Jordan's Journey
01:13 Understanding the Impact of TMS on Life
01:28 Introduction and Background on TMS
04:20 Understanding Trans-Cranial Magnetic Stimulation (TMS)
07:23 The Experience of TMS Treatment
10:20 The Impact of TMS on Daily Life
13:09 Medical Gaslighting and Patient Advocacy
16:13 The Journey to Recovery and Diagnosis
19:14 Community Support and Sharing Stories
22:18 The Decision to Create a Documentary
25:13 Advocacy and Future Goals
36:11 The Need for Scientific Understanding in TMS
40:42 Coping with Chronic Illness and Disability
44:52 Navigating Family Planning Amidst Uncertainty
52:54 Leveraging Technology for Brain Injury Support
59:42 Personal Growth Through Adversity
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Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin
Summary
In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses.
Keywords
epilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women’s health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility
Hosted on Acast. See acast.com/privacy for more information.
Chapters
00:00 Introduction to Romance Writing and Disability
05:49 Life Changes During the Pandemic
11:53 Writing Romance with Chronic Illness
17:55 Representation of Disability in Romance
24:35 The Viral Success of a Romance Novel
31:07 Writing as a Form of Self-Discovery
36:06 Navigating Writing with Disabilities
49:59 The Journey of Training a Service Dog
Summary
In this conversation, the speakers delve into the intersection of romance writing and disability representation, particularly focusing on the experiences of chronically ill individuals. They discuss the impact of the pandemic on their lives, the process of writing romance novels that feature disabled characters, and the importance of authentic representation in literature. The conversation also touches on the viral success of one speaker's romance novel, the emotional journey of writing, and the practical challenges of writing with disabilities. Additionally, they explore the journey of training a service dog and how it has positively influenced their lives.
Takeaways
The pandemic led to significant life changes and new diagnoses.
Writing romance novels became a creative outlet during difficult times.
There is a need for authentic representation of disabled characters in romance.
Readers appreciate seeing themselves reflected in literature.
The success of a romance novel can be validating for writers.
Writing can be a form of self-discovery and healing.
Navigating the writing process with disabilities requires adaptation and support.
Service dogs can provide emotional and physical support for their owners.
Community and connection are vital for those with chronic illnesses.
The journey of self-publishing can be empowering despite challenges.
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Summary
In this conversation, Tessa Lynn Hodge discusses her journey from being a licensed clinical social worker to running for office in District 23. She emphasizes the importance of community engagement, healthcare reform, and the need for authenticity in politics. Tessa shares her experiences and insights on the challenges faced by her community, particularly in rural areas, and highlights the significance of mental health accessibility and telehealth. Her campaign focuses on putting people over party and advocating for grassroots funding to ensure real change.
Keywords
disability, politics, healthcare, community, mental health, grassroots, Tessa Lynn Hodge, election, advocacy, social work
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Keywords
health advocacy, patient empowerment, healthcare system, self-advocacy, doctor visits, healthcare resources, United States of Healthcare, patient stories, healthcare challenges, AI in healthcare
Summary
In this conversation, Joyce Griggs shares her journey into health advocacy, highlighting the challenges faced by patients in navigating the healthcare system. She discusses the importance of self-advocacy, preparing for doctor visits, and managing the dynamics between patients and healthcare providers. Joyce emphasizes the need for personalized care and the role of technology, including AI, in shaping the future of healthcare. The discussion also touches on the systemic issues within the healthcare system and the importance of community support and resources for patients.
Takeaways
Advocacy is crucial for navigating the healthcare system.
Patients often face significant challenges in getting proper care.
Self-advocacy is an essential skill for all patients.
Preparing for doctor visits can improve outcomes.
Emotional management is key before healthcare appointments.
Bias exists in healthcare, affecting patient treatment.
Community support can empower patients in their advocacy efforts.
AI has potential benefits and risks in healthcare decision-making.
Personalized care is necessary for effective treatment.
Understanding insurance processes can help patients advocate for themselves.
Titles
Navigating the Healthcare Maze: A Journey of Advocacy
Empowering Patients: The Role of Self-Advocacy
Sound bites
"We need to be our own advocates."
"We are the experts of ourselves."
"Personalized care is essential."
Chapters
00:00 Introduction to Health Advocacy
02:54 Personal Journey into Healthcare Advocacy
05:53 Navigating the Healthcare System
08:25 Building the United States of Healthcare
11:34 Resources for Health Advocacy
14:23 Preparing for Doctor Visits
17:07 Managing Emotions in Healthcare
19:48 Interviewing Healthcare Providers
22:49 Addressing Systemic Issues in Healthcare
28:02 Navigating Healthcare Access Challenges
30:38 Addressing Power Imbalances in Healthcare
34:26 The Impact of Bias in Medical Treatment
35:22 Evolving Perspectives in Medicine
37:23 Utilizing Technology for Patient Advocacy
42:04 Building Community and Support
46:51 Envisioning a Better Healthcare System
50:20 end cap.mp4
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Unpack the shocking influence of money in politics with us! We dissect how large donations and Super PACs are shaping elections and explore the crucial role of grassroots movements and community engagement in fighting back. Discover strategies for building political support, navigating the path to candidacy, and fostering meaningful conversations across political divides. We delve into the complexities of political discourse, the power of empathy, the necessity of intergenerational dialogue, and the urgent need for term limits. Learn about the lasting impact of Citizens United and why engaging marginalized communities, especially the disability community, is paramount. Hear personal stories on how family shapes political views and the undeniable importance of grassroots support for impactful campaigns.
money in politics, super pacs, large donations, grassroots movements, community engagement, political campaigns, running for office, candidacy, political discourse, empathy in politics, intergenerational dialogue, term limits, citizens united, disability vote, disability community, marginalized communities, family and politics, grassroots support, election influence, campaign strategies
Hosted on Acast. See acast.com/privacy for more information.
Keywords
Aggressive Systemic Mastocytosis, chronic illness, advocacy, mental health, writing, self-care, body image, healthcare activism, rare diseases, education
Summary
In this conversation, Rachel Largent Phillips shares her journey with aggressive systemic mastocytosis, a rare disorder that significantly impacts her daily life. She discusses the challenges of living with a chronic illness, including navigating the healthcare system, advocating for herself and others, and the emotional toll of writing her book, 'Life Beyond the Flare.' Rachel emphasizes the importance of self-care, mental health, and authenticity in the face of societal pressures and the complexities of living with a rare disease. She also highlights the political nature of healthcare and the need for continued advocacy for those with chronic illnesses.
Takeaways
Rachel was born with aggressive systemic mastocytosis, diagnosed in her 30s.
It took 12 years for her to receive a proper diagnosis.
Daily life is unpredictable, requiring constant vigilance and preparedness.
Advocacy is crucial; Rachel has lobbied for healthcare reforms.
Writing her book was a way to educate others about her rare disease.
Self-care and giving oneself grace are essential for managing chronic illness.
Rest can take many forms, including mental and emotional breaks.
Navigating relationships while managing a chronic illness can be challenging.
Societal beauty standards can add pressure to those with chronic illnesses.
Mental health is as important as physical health in chronic illness management.
Sound bites
"I was born with it."
"I have lots of EpiPens."
"It's okay to have bad days."
Chapters
00:00 Understanding Aggressive Systemic Mastocytosis
03:31 Navigating Daily Life with a Rare Disorder
07:47 Advocacy and Activism in Healthcare
10:51 The Emotional Journey of Writing a Book
13:48 Finding Grace in Chronic Illness
16:01 Rest and Self-Care Strategies
18:27 Managing Allergies and Anaphylaxis
21:33 Dating and Relationships with Chronic Illness
24:45 Societal Pressures and Body Image
29:11 The Importance of Mental Health
34:07 The Power of Authenticity
37:34 Navigating the Medical System
43:45 The Reality of Living with a Rare Disease
49:56 Pursuing Education Amidst Health Challenges
54:06 The Political Nature of Healthcare
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Join us for Part 2 of our inspiring conversation with acclaimed Fantasy Author Faye Perez on the "Invisible Not Broken" podcast! In this wide-ranging episode, Faye shares unique insights on how "Dressing Up" can be a powerful path to joy and self-expression, even when navigating the complexities of invisible disabilities.
We delve into the "Rebellion of Kindness" and its role in fostering positive change, exploring how to build resilient communities in increasingly challenging times. Faye also offers profound reflections on the changing landscape of social norms and the nuanced experience of "Aging in the Time of COVID," providing a unique perspective on resilience and adaptation.
For aspiring and established writers, this episode is packed with wisdom! Faye demystifies the "Writing Journey," revealing practical strategies for "Organizing Your Thoughts for Writing Success" and the transformative power of "Embracing the Joy of Writing." She candidly discusses "Navigating the Writer's Journey" and the profound "Art of Writing: Process and Responsibility."
Tune in for an authentic, thought-provoking discussion that blends creativity, social commentary, and personal growth. Whether you're a fantasy fan, an aspiring writer, or someone interested in disability advocacy and building a kinder world, this episode offers invaluable takeaways.
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Looking for a more inclusive, accessible way to date while disabled or chronically ill? 💘 In this eye-opening podcast episode, we talk to Jacqueline and Alexa Child, the founders of Datability — a revolutionary dating app built by and for the disability community. They open up about dating with chronic illness, building tech for accessibility, and why representation in love matters.
This episode is perfect for anyone searching for disability-friendly dating apps, chronic illness support, or inspiration from disabled entrepreneurs.
💬 Tap to listen and save for later!
📌 Follow for more disability advocacy, inclusive tech, and real talk about relationships.
#DisabilityDating #Datability #InclusiveLove #ChronicIllnessAwareness #DisabledAndProud #AccessibleDating #DatingWithDisabilities #DisabledEntrepreneurs #RepresentationMatters #PodcastRecommendations #PinterestPodcast #LoveWithoutLimits
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Summary
In this conversation, Sarah Burton shares her journey with chronic illness, discussing her diagnosis, the challenges of parenting while managing health issues, and her transition from a corporate career to entrepreneurship. She emphasizes the importance of community support for individuals with chronic illnesses and the need for greater awareness and understanding in the workplace. This conversation delves into the challenges faced by entrepreneurs with chronic illnesses, emphasizing the importance of taking intentional time off, building supportive communities, and implementing effective business strategies. The speakers discuss tools for managing health while running a business, the necessity of setting boundaries, and the cultural changes needed in workplaces to accommodate diverse needs. They also highlight the significance of hiring disabled individuals and the Lilac project aimed at improving government support for disabled entrepreneurs.
Keywords
chronic illness, disability, parenting, ambition, entrepreneurship, support, community, diagnosis, mental health, workplace inclusion, chronic illness, entrepreneurship, mental health, community support, business strategies, work-life balance, disability inclusion, government support, automation tools, boundaries
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Summary
In this conversation, the speakers discuss various aspects of puppy training, particularly focusing on the challenges of training service dogs. They delve into the teenage phase of puppies, the fear periods that can arise during development, and how to manage trauma in service dogs after negative encounters with other dogs. The conversation emphasizes the importance of proper training techniques, socialization, and the need for vigilance in public spaces to ensure the safety and well-being of service dogs. This conversation delves into the essential aspects of training service dogs, focusing on foundational skills, assessment programs, handling emergencies, and navigating the challenges of training during a dog's teenage phase. The speakers discuss the importance of confidence in dogs, the differences between CGC and PDA programs, and practical advice for trainers, especially those with disabilities. They also touch on the timing of neutering and its impact on behavior, emphasizing a tailored approach to each dog's training journey.
Keywords
puppy training, service dogs, fear periods, dog behavior, trauma recovery, dog interactions, training tips, service dog management, puppy adolescence, dog anxiety, service dog training, dog behavior, training techniques, mobility aids, dog assessment programs, emergency handling, teenage dog training, neutering debate
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Summary
In this conversation, the speakers discuss the complexities of choosing and training service dogs versus puppies, emphasizing the importance of temperament, the challenges of finding suitable dogs, and the training process. They share personal experiences and insights on navigating the world of service animals, including the significance of socialization and public perception. In this conversation, the speakers discuss various aspects of puppy training, focusing on capturing natural behaviors, creating a conducive learning environment, and the importance of crate training. They also touch on navigating dog parks, the need for services for disabled dog owners, establishing routines, and essential commands for service dogs. The conversation emphasizes the significance of understanding puppy development and the challenges that come with training during different growth stages.
Keywords
service dogs, puppies, training, temperament, challenges, public perception, potty training, socialization, choosing a dog, service dog training, puppy training, dog behavior, crate training, service dogs, dog parks, routines, commands, dog owner services, puppy development, positive reinforcement
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Summary
In this conversation, Jess shares their journey of writing the book 'Being Sick Enough', which explores themes of invisible illness, childhood trauma, and the complexities of living with chronic conditions. The discussion delves into the challenges faced as a sick child, the misunderstandings surrounding invisible illnesses, and the process of writing personal stories while navigating relationships and self-acceptance. In this conversation, the speakers delve into the complexities of navigating trauma, the importance of meditation, and the intersection of medication and wellness. They discuss the significance of honest conversations about medication, the balance between solitude and community, and the role of spirituality in personal healing. The dialogue also touches on societal challenges and the need for empathy, as well as practical travel tips for those with chronic illness.
Keywords
invisible illness, chronic illness, trauma, writing, personal stories, mental health, self-acceptance, authenticity, healing, Jess, trauma, meditation, wellness, medication, spirituality, empathy, chronic illness, travel tips, community, solitude
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Summary
In this conversation, Maggie Bushway shares her experiences as a child with brain cancer and the impact it had on her life, family, and friendships. She discusses the importance of autonomy in medical decisions, the role of writing in processing emotions, and the challenges of managing chronic illness while pursuing her passion for writing. The conversation also touches on the dynamics of friendship during illness, the journey of writing a memoir, and the balance between social life and work amidst health challenges.
Takeaways
Maggie felt included in her medical decisions, which empowered her.
Autonomy is crucial for children facing health challenges.
Friendship can provide both support and normalcy during illness.
Writing serves as a powerful tool for emotional expression.
Reading her father's blog helped Maggie process her past.
Maggie's early writing experiences laid the foundation for her memoir.
Journaling can be a helpful starting point for aspiring writers.
Managing chronic illness requires careful scheduling and prioritization.
Finding humor in difficult situations can aid in coping.
Creative expression can take many forms, including fiction.
Keywords
Maggie Bushway, childhood illness, memoir, writing, chronic illness, friendship, family dynamics, emotional processing, creative expression, support
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Summary
In this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs and their handlers. This conversation delves into the distinctions between service dogs and emotional support animals, emphasizing the legal definitions and roles of each. It explores the challenges faced by service dog owners, including the need for proper training and support systems. The discussion highlights the importance of planning for the future care of service dogs, especially for individuals with degenerative conditions. Additionally, it covers the process of finding the right dog and trainer, advocating for positive reinforcement training methods, and the significance of using food as a motivational tool in dog training.
Chapters
00:00 Introduction to Service Dogs and Their Importance
03:13 The Cost and Accessibility of Service Dogs
06:07 The Journey into Dog Training
08:52 Understanding Dog Behavior and Training Methods
12:06 The Need for Service Dogs: When is it Time?
14:59 Choosing the Right Breed for Service Dogs
17:45 Public Misconceptions About Service Dogs
25:50 Understanding Service Dogs vs. Emotional Support Animals
29:08 Navigating the Challenges of Service Dog Ownership
31:55 Preparing for a Service Dog: Key Considerations
34:22 Finding the Right Dog and Trainer
38:53 The Importance of Positive Reinforcement in Training
44:57 Innovative Training Techniques and Resources
Takeaways
Service dogs can be very expensive, ranging from $20,000 to $40,000.
Nonprofits may offer lower-cost options, but availability is limited.
Training a service dog can be a complex and costly process.
Understanding dog behavior is crucial for effective training.
Positive reinforcement is a more effective training method than punishment.
Many people consider getting a service dog too late in their journey.
The right breed for a service dog is less important than temperament.
Labradors, Goldens, and Poodles are commonly recommended breeds.
Public misconceptions about service dogs can lead to challenges for handlers.
Emotional support is not a task that qualifies a dog as a service dog. Service dogs are task-trained to mitigate specific disabilities.
Emotional support animals provide comfort but lack legal recognition as service animals.
It's crucial to have a plan for the care of a service dog as health conditions change.
Choosing the right breed is essential for first-time service dog owners.
Positive reinforcement is key to effective dog training.
Finding a qualified dog trainer can significantly impact training success.
Service dog tasks are tailored to individual needs and circumstances.
Proper training and socialization are vital for service dogs to function in public.
Planning ahead for a service dog's future is necessary for responsible ownership.
Using food as a reward can enhance training and strengthen the bond with your dog.
Keywords
service dogs, dog training, psychiatric service dogs, emotional support, dog behavior, training methods, cost of service dogs, choosing a service dog, public misconceptions, service dogs, emotional support animals, training, positive reinforcement, disability, dog ownership, service dog tasks, finding a trainer, dog breeds, service dog laws
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Summary
In this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, the speaker shares their experiences of parenting with a disability, discussing the challenges of communicating their condition to their children and the emotional toll it takes on family dynamics. They explore the journey of finding purpose while being bedbound and the therapeutic process of writing a book about their experiences. The discussion emphasizes the importance of support systems, the need for understanding in educational settings, and the resilience required to navigate life with a disability.
Takeaways
Gratitude can be a powerful tool for coping with chronic illness.
Public perception often overlooks the struggles of those with invisible illnesses.
Community support plays a crucial role in mental health and resilience.
The journey to diagnosis can be long and fraught with challenges.
Reframing the narrative around illness can lead to empowerment.
It's important to check in on loved ones, even those who seem happy.
Sharing personal stories can help others feel less alone.
Wearing heels can be a form of self-expression and empowerment.
Language matters when discussing illness and identity.
Writing can be a therapeutic way to share one's journey. Talking to children about disabilities requires different approaches based on their age.
The emotional impact of a parent's illness can lead to complex family dynamics.
Creating a game out of challenges can help children cope with difficult situations.
Parents often feel guilt for not being able to participate in typical activities with their children.
Support from family and friends is crucial when dealing with chronic illness.
Living with a disability can lead to feelings of isolation and despair.
Finding purpose and joy in life, even from bed, is possible.
Writing about personal experiences can be a healing process.
It's important to advocate for accessibility in schools and public spaces.
Resilience and community support are key to thriving despite adversity.
Keywords
gratitude, chronic illness, public perception, diagnosis journey, living with illness, mental health, autoimmune disorders, personal stories, resilience, community support, disability, parenting, mental health, communication, writing, resilience, family dynamics, bedbound life, emotional support, personal journey
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Summary
In this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being an active musician to adapting her life around her health challenges, including the use of a wheelchair. They also touch on the differences in healthcare systems between Denmark and the USA, emphasizing the need for better understanding and support for those with chronic illnesses. In this conversation, Monica Michelle and Ann-Britt discuss the challenges of traveling with a disability, the emotional journey of adapting to life changes due to chronic illness, and the importance of setting boundaries. They explore generational differences in self-care, the concept of diminished normalcy, and the emotional ties to home. Ann-Britt shares her musical inspirations and the themes of her upcoming album, highlighting the beauty in small moments and the power of creativity in the face of adversity.
Keywords
chronic illness, Ehlers-Danlos syndrome, mental health, creativity, music therapy, wheelchair use, healthcare systems, Denmark, USA, community support, chronic illness, accessibility, self-care, personal growth, music, life changes, boundaries, emotional health, travel experiences, generational differences
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Monica Michelle is joined by author Sue Jackson.
Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease.
In this episode, Monica and Sue discuss:
00:46 Sue’s diagnosis and how she manages her symptoms
13:03 Parenting with a chronic illness
25:02 COVID-19’s impact on chronic illness
30:35 Books as a form of escapism and connection
42:00 The challenges of writing and the importance of routines with chronic illness
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
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Monica Michelle is joined by artist Kyrianna Bolles.
Kyrianna lives with chronic pain.
In this episode, Monica and Kyrianna discuss:
00:00 Intro to Kyrianna
10:45 Kyrianna’s self portraits
24:42 Kyrianna’s Support group
33:40 Animus
45:57 Kyriannas favorite support tools
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
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Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon.
Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia.
In this episode, Nick and Monica discuss:
00:42 - Monica’s history and relationship with her disabilities
13:06 - How Monica found her voice *Trigger Warning: Mention of SA*
31:40 - Media representation
45:09 - Monica’s family
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
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